I think the thing that worries me the most is what will happen to Nicky when I'm not here. Last night was one of those nights where I started thinking about it. I imagined what his life could be like if no one is here to protect him and the images left me bent over, feeling sick and sobbing. It was so bad I just made myself stop. I told myself, to push it out of my mind, because right now I am here. I'm healthy and lord knows there's enough to think about that is happening right now! So I stop myself by repeating that over and over. I even made myself laugh by envisioning a funny scene of he and I living together in an assisted living complex sharing care givers, but I know there's nothing funny about it.
Will anybody care for him when I'm gone? What will our country do for all the adults living with autism? I pray we will do the right thing. But I don't know.
Hi Donna,
ReplyDeleteI often worry about the same thing. There is no family member I can trust the care of my 13 year old son if I die. So what do we do? Keep fighting for programs and services our kids need, and hopefully, they will have a life after we are gone.
Thank you for doing your blog, and sharing your thoughts and life with others.
Jennifer McNulty