All my ABA training failed me in this moment (See hospital video 1 and 2) because Nicky just wasn't going to cooperate. Aften an hour of trying to connect his EEG, with the help
of three nurses we failed when home. But it's not over here we are back again with supports in the form of Nicks big sister. Nicky was working us, first me and then his sister. But in the end, his sister and the nurses get it done, while Mom - who's comfort has become the ultimate reinforcer - stays out of the room. It's funny to see how easy and fast the process goes once Nicky resigns himself.
I am a single mom raising a son with autism. 21 years ago, I read "Autism: a permanent developmental disability requiring lifelong care for which there is no known cause or cure". In that moment my world shifted. Today more than 3.5 million readers have shared in our journey through this blog as I have detailed our 21-year journey of grief, joy, disappointments, successes, lessons, strategies, personal challenges, frustrations, fears all as they unfolded- day by day.
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ReplyDeleteEvyn is fantastic. She bore out the storm, was patient and firm. She has learned a lot from her mom. Thank you so much for sharing these difficult moments with us.
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