I am a single mom raising a son with autism. 21 years ago, I read "Autism: a permanent developmental disability requiring lifelong care for which there is no known cause or cure". In that moment my world shifted. Today more than 3.5 million readers have shared in our journey through this blog as I have detailed our 21-year journey of grief, joy, disappointments, successes, lessons, strategies, personal challenges, frustrations, fears all as they unfolded- day by day.
We cannot tip toe around this topic. If like me, you don't want to be the person in pain saying "I knew something was wrong. I wish I had done something, I wish I had known what to do."
Nicholas cried so intensely and continually as a new born that he herniated his belly button at 8 weeks. The doctors could not figure out why he was suffering and crying constantly, and told me he would have to have surgery to repair his belly button if the crying continued. I knew it had to do with his stomach, but I was not sure if that was the only factor. The thought of my infant having surgery was frightening and I wanted another solution. Finally, a nurse showed me how to take a silver dollar and tape down his belly button. She promised me it would work, and made me promise not to tell the Dr. about this remedy she had learned from her grandmother. I agreed and gave it a try, and it worked! Early understanding of his suffering would have meant the world to our family. So, this is no doubt an incredible break through filled with possibility and hope for new parents. That said, we all know underserved populations are at the bottom of the totem pole when it comes to quality healthcare and access to technologies. Let's watch and see if Ana Laguna steps up ensuring this new technology can be available to all families, not just the 10%. Here's the full story....
Startup That Translates Baby Cries
Is Planning To Expand To Help Parents Detect Autism Early
By Disability Insider
During the first months of a newborn’s life, parents struggle to
know what their babies are crying about – what exactly do they want?
Ana
Laguna, a 33-year-old scientist and expert in data management, had her first
child in 2016. After a few hours of crying, she came up with an idea — there
had to be a way of translating a newborn’s cries, so, as reported by Business
Insider, Laguna decided to record her own baby’s cry to look for patterns.
Over
the years, Laguna’s ‘idea’ converted into a fully-fledged company called
Zoundream, which develops software to translate newborn babies’ cries,
especially those up to six months of age.
According
to Business Insider, Zoundream raised almost $1 million in crowdfunding. It is
now turning its attention to utilizing its research into detecting atypical
developments in newborns.
There
are more than 7,000 languages in the world; however, the way newborn babies
communicate their ‘wants’ is all-inclusive.
Business
Insider reported that Zoundream translates babies’ cries into five varieties:
hunger, sleep, pain, gas, and the desire for bonding or to be held.
This
classification method is most effective on babies up to three months old, when
crying is the most authentic.
Laguna
told Business Insider that she has enhanced the project by including recordings
of babies from around the globe.
Zoundream
has collected thousands of hours of cries provided by parents in Europe, Asia,
and the entire American continent.
This
means Zoundream is already working on refining translations through devices
that are still just prototypes, reported Business Insider.
Zoundream
is creating connections with companies that will help to integrate this
technology in prams, bracelets, or even in surveillance cameras.
The
company has received tremendous feedback.
“I
remember, for example, a mother who said that her son wouldn’t stop crying. The
recordings told us that he was hungry,” said Laguna. “It didn’t make sense to
her, because she kept breastfeeding him. Eventually, she told us that we were
right, that the doctor had detected a problem with his lingual frenulum and
that he wasn’t feeding well.”
It was
situations like these that motivated Zoundream to take the next leap and use
their technology to discern atypical developments through the way babies cry.
“The
cry of a child on the autistic spectrum is very characteristic, very hoarse.
You can see it quite clearly on the spectrogram.”
By
doing this, Laguna explained that they hope to help improve early autism
diagnoses, which can greatly improve quality of life.
“In
cases of early diagnosis,” she said, “autism is detected at around the age of
two. Imagine the improvement if it could be done before the age of six months.”