Showing posts with label Repetitive Behaviors. Show all posts
Showing posts with label Repetitive Behaviors. Show all posts

Tuesday, September 21, 2021

Deal With These Behaviors or Suffer the Consequences for a Lifetime

Self stimulatory behaviors, obsession and narrow interest are cornerstone behaviors of Nick's autism that began before his diagnosis. I hoped with intervention he would outgrow these,  still they are in full effect today. This behavior has been described in many words that mean the same thing for us, including; 

    • Repetitive
    • Repeating
    • Rumination 
    • Obsessing
    • Scripting
    • Perseveration 
    • Over stimulation 
    • Stemming
    • Echolalic 
    • Self Stimulatory Behavior 
    • Limited/Narrow Interest

Over the years Nicks need to put his favorite topic's on auto repeat by any means possible (internally or externally) has been given lot's of names but it has never changed!  Nick is addicted to repetition. Anything Nick likes, he likes a lot. Anything he likes he wants to have repeated in shotgun style; rapid, bold with no holds barred. Nick will find any way to get a thing to repeat, from lists, to baby video's, to end credits, toy sounds, to words, one phrase in a song, to questions anything he can repeat.  Nick wants to live in a loop where he can hear or see the same thing over and over. He is an addict for repetition, he loves it and Nick could replay a 3 second piece of a song, a dinosaur roar, video clip, or 6 second movie segment back-to-back over and over for hours either in the real world or just in his head.

He gets so happy; he jumps up and down laughing hysterically as he spins and drools with joy!  I know to some of you this may sound cute and harmless yet it is anything but.  Sadly, this thing that Nick loves so much that makes him so happy is like a drug, when you're up it's great, but the crash is ugly. 

Nick repeats and in doing so he grows more and more excited with each spin around the loop. But unlike the rest of us he cannot regulate his body's response to the things he loves. Repeating gets him overstimulated, when he is overstimulated, he can't think of anything else but the thing that stimulates him, and he loses all impulse control. When he is asked to stop, he gets upset. When he gets upset, he doesn't hear what you say to him, he begins to tantrum and he cannot be redirected to anything positive. He often becomes aggressive and then he falls into intense sadness and crying as he crashes that can last up to 24 hours.

It's so sad that things he loves are bad for him, and that is why I call it his heroine! 

Sadly, the problem is not just limited to how it makes him feel. Having things repeat over and over and taking part in Nick's tantrums makes others feel anxious, angry, tortured, nervous, frustrated and ready to crawl out of their skins as they beg him to stop and then are forced to deal with the fallout. 

What I know for sure is that this aspect of Nick's autism will be with him for a lifetime, but the fallout for us has been minimized using these five strategies. For Nick it's all about;

1. Constantly working to expand his areas of interest. The more things he has to do, the fewer opportunities he has to focus on his obsession's. 

2. Restricting his access to ANYTHING that he can use to access his obsessions. In Nicks case no one is allowed to let Nick get on a computer, a cell phone, TV, or tablet unless we have agreed exactly how it is being used, and Nick is not controlling it. 

3. Finding if there is any formula that works where he can have any amount of his obsessions. In Nick's case Nick can earn 15 minutes, 1 day per week of free time on the computer. During this time, he can look up and repeat any of his obsessions. I have learned that is how much he can tolerate and still retain impulse control. A change as simple as letting him go for 20 minutes results in a lack of impulse control and the subsequence crash.

4. Making sure EVERYONE who is around Nick knows the rules and follows them, even when they think I'm wrong or being too hard on him. 

5. Introducing incompatible behaviors. When Nick wants to be in his head playing one of his favorite video loops, I have him do an activity where he cannot be in his head at the same time. For him coloring a picture, doing a puzzle or a word search work. He can’t do any of these and play a video because the two activates are incompatible.

5. Not letting anyone talk me out of what I know is best for Nick. For years I let "experts" convince me and sometimes shame me into letting Nick indulge in his obsessions.  And, in the end, Nick did not build an improved tolerance, or gain from the experience. Instead, I was always left to deal with the fallout when they moved on to another case, or headed home. I finally learned that no matter how hard others tried to convince me that a little heroine can't be that bad! 


Thursday, July 26, 2012

What is Autism?


What is Autism?
Yesterdays post “What is Asperger’s Syndrome?” Triggered a lot of emails from people wanting to know “What exactly is autism?”.  Thanks to all of you who stepped up to ask! For those of you who have no idea or are just not quite sure, here’s a definition.  I have to say as a mom of a child with autism, this is a definition and gives you facts, which are good. What it won’t do is help people to grasp how unique each child with autism is, and what it really looks like.  I can’t show you that for every family but I can show you some. To better understand, you need to see what autism looks like. If you want to see what autism looks like up close and personal visit: http://www.youtube.com/user/AutismDayByDay?feature=watch.  Pick a topic and take a peek.

What is Autism? What Causes Autism?

This definition from: http://www.medicalnewstoday.com

Autism is known as a complex developmental disability. Experts believe that Autism presents itself during the first three years of a person's life. The condition is the result of a neurological disorder that has an effect on normal brain function, affecting development of the person's communication and social interaction skills.
People with autism have issues with non-verbal communication, a wide range of social interactions, and activities that include an element of play and/or banter.

What is ASD?

ASD stands for Autism Spectrum Disorder and can sometimes be referred to as Autistic Spectrum Disorder. In this text Autism and ASD mean the same. ASDs are any developmental disabilities that have been caused by a brain abnormality. A person with an ASD typically has difficulty with social and communication skills.
A person with ASD will typically also prefer to stick to a set of behaviors and will resist any major (and many minor) changes to daily activities. Several relatives and friends of people with ASDs have commented that if the person knows a change is coming in advance, and has time to prepare for it; the resistance to the change is either gone completely or is much lower.

Autism is a wide-spectrum disorder

Autism (or ASD) is a wide-spectrum disorder. This means that no two people with autism will have exactly the same symptoms. As well as experiencing varying combinations of symptoms, some people will have mild symptoms while others will have severe ones. Below is a list of the most commonly found characteristics identified among people with an ASD.

Social skills

The way in which a person with an ASD interacts with another individual is quite different compared to how the rest of the population behaves. If the symptoms are not severe, the person with ASD may seem socially clumsy, sometimes offensive in his/her comments, or out of synch with everyone else. If the symptoms are more severe, the person may seem not to be interested in other people at all.
It is common for relatives, friends and people who interact with someone with an ASD to comment that the ASD sufferer makes very little eye contact. However, as health care professionals, teachers and others are improving their ability to detect signs of autism at an earlier age than before, eye contact among people with autism is improving. In many cases, if the symptoms are not severe, the person can be taught that eye contact is important for most people and he/she will remember to look people in the eye.
A person with autism may often miss the cues we give each other when we want to catch somebody's attention. The person with ASD might not know that somebody is trying to talk to them. They may also be very interested in talking to a particular person or group of people, but does not have the same skills as others to become fully involved. To put it more simply, they lack the necessary playing and talking skills.

Empathy - Understanding and being aware of the feelings of others

A person with autism will find it much harder to understand the feelings of other people. His/her ability to instinctively empathize with others is much weaker than other people's. However, if they are frequently reminded of this, the ability to take other people's feelings into account improves tremendously. In some cases - as a result of frequent practice - empathy does improve, and some of it becomes natural rather than intellectual. Even so, empathy never comes as naturally for a person with autism as it does to others.
Having a conversation with a person with autism may feel very much like a one-way trip. The person with ASD might give the impression that he is talking at people, rather than with or to them. He may love a theme, and talk about it a lot. However, there will be much less exchanging of ideas, thoughts, and feelings than there might be in a conversation with a person who does not have autism.
Almost everybody on this planet prefers to talk about himself/herself more than other people; it is human nature. The person with autism will usually do so even more.

Physical contact

A number of children with an ASD do not like cuddling or being touched like other children do. It is wrong to say that all children with autism are like that. Many will hug a relative - usually the mother, father, grandmother, grandfather, teacher, and or sibling(s) - and enjoy it greatly. Often it is a question of practice and anticipating that physical contact is going to happen. For example, if a child suddenly tickles another child's feet, he will most likely giggle and become excited and happy. If that child were to tickle the feet of a child with autism, without that child anticipating the contact, the result might be completely different.

Loud noises, some smells, and lights

A person with autism usually finds sudden loud noises unpleasant and quite shocking. The same can happen with some smells and sudden changes in the intensity of lighting and ambient temperature. Many believe it is not so much the actual noise, smell or light, but rather the surprise, and not being able to prepare for it - similar to the response to surprising physical contact. If the person with autism knows something is going to happen, he can cope with it much better. Even knowing that something 'might' happen, and being reminded of it, helps a lot.

Speech

The higher the severity of the autism, the more affected are a person's speaking skills. Many children with an ASD do not speak at all. People with autism will often repeat words or phrases they hear - an event called echolalia.
The speech of a person with ASD may sound much more formal and woody, compared to other people's speech. Teenagers with Asperger's Syndrome can sometimes sound like young professors. Their intonation may sound flat.

Repetitive behaviors

A person with autism likes predictability. Routine is his/her best friend. Going through the motions again and again is very much part of his/her life. To others, these repetitive behaviors may seem like bizarre rites. The repetitive behavior could be a simple hop-skip-jump from one end of the room to the other, repeated again and again for one, five, or ten minutes - or even longer. Another could be drawing the same picture again and again, page after page.

People without autism are much more adaptable to changes in procedure. A child without autism may be quite happy to first have a bath, then brush his teeth, and then put on his pajamas before going to bed - even though he usually brushes his teeth first. For a child with autism this change, bath first and then teeth, could completely put him/her out, and they may become very upset. Some people believe that helping a child with autism learn how to cope better with change is a good thing, however, forcing them to accept change like others do could adversely affect their quality of life.

A child with autism develops differently

While a child without autism will develop in many areas at a relatively harmonious rate, this may not be the case for a child with autism. His/her cognitive skills may develop fast, while their social and language skills trail behind. On the other hand, his/her language skills may develop rapidly while their motor skills don't. They may not be able to catch a ball as well as the other children, but could have a much larger vocabulary. Nonetheless, the social skills of a person with autism will not develop at the same pace as other people's.

Learning may be unpredictable

How quickly a child with autism learns things can be unpredictable. They may learn something much faster than other children, such as how to read long words, only to forget them completely later on. They may learn how to do something the hard way before they learn how to do it the easy way.

Physical tics and stimming

It is not uncommon for people with autism to have tics. These are usually physical movements that can be jerky. Some tics can be quite complicated and can go on for a very long time. A number of people with autism are able to control when they happen, others are not. People with ASD who do have tics often say that they have to be expressed, otherwise the urge does not stop. For many, going through the tics is enjoyable, and they have a preferred spot where they do them - usually somewhere private and spacious. When parents first see these tics, especially the convoluted ones, they may experience shock and worry.

Obsessions

People with autism often have obsessions.

Myths about autism

A person with autism feels love, happiness, sadness and pain just like everyone else. Just because some of them may not express their feelings in the same way others do, does not mean at all that they do not have feelings - THEY DO!! It is crucial that the Myth - Autistic people have no feelings - is destroyed. The myth is a result of ignorance, not some conspiracy. Therefore, it is important that you educate people who carry this myth in a helpful and informative way.
Not all people with autism have an incredible gift or savantism for numbers or music. People with autism are ordinary people... with autism.

Autism news Medical News Today is a leading resource for the latest headlines on autism.