Showing posts with label funding. Show all posts
Showing posts with label funding. Show all posts

Tuesday, June 6, 2017

Please take 5 Minutes to Improve the Lives of Children with Autism - and the families who love them!


THURSDAY the Senate and Assembly are finishing up final negotiations on the Budget and we have the first opportunity in years to possibly restore camping and social recreation, and lift the cap on respite.... but only if we call immediately!  

Nick at Camp, such an important experience! 
For those of you who are not aware, the Regional Center used to provide funding so our children, just like typical children, could enjoy social recreational activities, like summer camp!.  These supports were pulled from the budget and for the first time in at least 10 years we have a shot at getting them back. Will you help?

Everybody can contact the Governor and the Department of Finance (the state's accountants), and if you are also represented by a member of the Conference Committee, call them too. This is moving fast, and will be done by Thursday, so CALL TODAY!

(1) Click here and find your Senator and Assemblymember.
(2) If they are 
on this list, call their office and say "I am a constituent, and I support a Budget restoring camp and social recreation, and lifting the cap on respite services, to help people with developmental disabilities."
(3) 
Contact the Governor's office and also click here to email his representatives in the Department of Finance, and ask for this restoration!
(4) Everybody can also call two key leaders in the Legislature (Senate President Kevin de León, 916-651-4024, and Assembly Speaker Anthony Rendon, 916-319-2063) to say this matters to you! 
Why do we need these services back?

Respite reduces the stress experienced by families and oftentimes allows a trusted relative or friend to provide the service. Some families prefer camp or social recreation services because of the added benefit of group social opportunities for the individual while the family is taking a break from their care. For some, a blending of these services meets their needs best. In 2009, many services, including these, were cut to save money.

In a recent Budget hearing, Democrats and Republicans both said they understand just how valuable these services are to our community. They are interested in restoring them. But we need to put the pressure on to make sure this happens! And we have to act fast, because our chance ends Thursday, when the hearings are finished.

Everybody must remind the Governor, his accountants, Senate President Kevin de León, and Assembly Speaker Anthony Rendon, that bringing this back helps families!

Contacts everyone can make!

Key Legislators (if you are a constituent)

You can make a difference! Raise your voice to support bringing back these important services today.

(1) Contact the Governor, and also click here to email his representative in the Department of Finance.
(2) Tell legislative leaders Senate President Pro Tem Kevin de León (916-651-4024) and Assembly Speaker Anthony Rendon (916-319-2063) that this matters!
(3) Find out who your Senator and Assemblymember are. If they are on the list above, call them!
(4) When you contact any of these officials, say who you are, and that "I support restoring social recreation and camp, and lifting the cap on respite, to help people with developmental disabilities."

Thursday, November 5, 2015

Governor Brown Stifles Bill That Would Provide Essential Funding Increase for Development Services

Seems our fight is NOT over. The future is not looking bright for our children as schools, states, politicians and insurance agencies realize the long term expense of caring for individuals with autism and other developmental disabilities. They are fighting to pass the expense on to someone else and stall efforts due to bipartisan inaction. This is a human issue and I'm sure Democrat, Republican, Tea Party and Independent party families are united when it comes to getting care for their loved ones. Sadly, any party being right won't be enough when it comes to budget. Families can't afford care on our own, so our only option to is be LOUD and let politicians know that Autism and developmental disabilities are not just an in topic to mention in speeches to get the attention of our families, but a real issue, and we demand their support!  

Write a letter, make a call or watch and see where the chips fall. I promise if we are not heard it will not be good. 
Donna


Bill would yield needed funding increase for developmental services
By The Editorial Board, LA Daily News

In August, when the Legislature’s special session on health care and developmental services was in still in session, we criticized Democratic leaders for not bringing forward good bills by their Republican colleagues.
Sen. Ed Hernandez, D-West Covina, talks with Senate President Kevin de Leon, D-Los Angeles, in this file photo. Hernandez is co-chair of the Legislature's special session conference committee on health and developmental services.(AP Photo/Rich Pedroncelli 
Now, with more than two months of hindsight under our belts, that obviously partisan inaction looks even worse.


If Senate Bill X2-4, by Republicans Jim Nielsen and Jeff Stone, had passed and been signed into law, it would be well on the way to producing the desperately needed 10 percent increase in funding for developmental services that the Lanterman Coalitionsought in the 2015-16 budget.
Instead, Gov. Jerry Brown stiffed the developmental community in the regular budget process and punted to a special session, which has produced nothing.
But it’s not too late. The special session is still officially “on,” with a Senate-Assembly conference committee formed to address the problem. Unfortunately, that committee has not held a single meeting.
If they continue to ignore the one bill that provides hope for additional developmental funding this fiscal year, Democratic leaders would doom nearly 300,000 of their most vulnerable constituents to another year of shrinking services. After seeing their resources from the state shrivel for two decades, that’s not what the developmental community deserves.
Quite the opposite. Californians with developmental disabilities and their loves ones and those who care for them deserve the immediate 10 percent funding hike along with a stable revenue scheme that will bring the system back to the minimum level of services promised in the 1969 Lanterman Act.
SBX2-4 would sweep unanticipated revenues — tax money above and beyond that budgeted for last fiscal year and this one — into funding for developmental services and Medi-Cal. It mandates that the director of the state Department of Finance, by Jan. 10, 2016, and again by May 14, determine excess revenue, subtract the amount that must go to schools under Proposition 98 and to the state’s rainy-day fund under Prop. 2, and direct the rest to developmental services until that 10 percent increase is funded, retroactive to July 1, 2015; any money left over after that would go to Medi-Cal providers.
The 2014-15 fiscal year ended with $732 million in unanticipated revenue, according to the state Department of Finance’s July finance bulletin. In the first three months of the fiscal year, the department reports, “Year-to-date revenues are $744 million above the expected $22.855 billion.”
That’s easily enough “extra” cash to give developmental services the 10 percent funding increase, which would cost about $350 million.
So what’s the problem?
The Legislature should simply get off the dime and pass SBX2-4.

Sen. Ed Hernandez, D-West Covina, failed to bring SBX2-4 forward to be heard as chairman of the special session’s Senate committee. Now we urge him and Assemblyman Rob Bonta, D-Oakland, co-chairs of the conference committee on health and developmental services, to convene their committee and to hear and debate SBX2-4 while the money is rolling in to state coffers.

Thursday, September 3, 2015

Families Fight the Greif that Keeps on Giving; Emotionally and Financially.


I know I look and sound like Chicken Little, running in circles screaming "The Rates Are Falling. The Rates Are Falling!!!!!" and "The system is collasping and a catastrophy looms ahead!!!!!".  Nonetheless, I keep screaming because I am scared for my son. I am angry when I think about what will happen because we as a nation are making careless, short term decisions.  


But thank goodness I am not alone. If you have not heard me, maybe you can hear the three voices below.  As always thanks for the comments. 

  1. Poverty wages for those who change lives, meanwhile Jeb Bush was paid $1.3 million to funnel federal (FEDERAL) funds to the Lehman Brothers investment company in Florida. Footnote, the Lehman Bros. failed, taking all those federal funds that could have helped thousands of individuals with autism down the drain.
  2. AnonymousSeptember 1, 2015 at 9:41 AM
  3. Hope you get a big support group, This group is majority with growing cases yearly. Wonder if it affects any politician personally. Election Day should align with your causes and belief. People need to be proactive.
    ReplyDelete
  4. Even after 6 years of supporting individuals with developmental disabilities, there was no way for me to support myself, let alone support a family. To me it seemed like every year I would just see less and less. It came to a point where I had to decide on caring for my own family or to give support to these individuals.