Showing posts with label social recreation. Show all posts
Showing posts with label social recreation. Show all posts

Wednesday, June 28, 2017

Autism Goes Mainstream

Autism Goes Mainstream; Chuckie Cheese Goes Sensory Friendly Improving the Experience for Some Children with ASD. I'm not sure if this modification would have helped Nick, but it's a great thing for many children who have ASD accompanied by sensory processing disorder.  


Most people envision kids with autism with sensory issues as holding their ears, or not being able to tolerate the overwhelming stimuli of places like Chuckie Cheese, but that's not the only sensory response children with autism can have, and it's not the response Nick has.

Nick's first birthday party was at Chuckie Cheese, before he developed autism, and before I had a clue how the environment might be affecting him, and he sure seemed to love it. Then post diagnosis (Nick was diagnosed at 23 months) during his preschool and elementary school years Chuckie Cheese was the place to go.  It was a safe haven where his behaviors and noises for the most part just blended in with the general chaos. A place where the typical kids were acting like my spectrum kiddo, running, yelling, darting, jumping, slamming into one another and all was accepted.  Perhaps best of all, parents were too busy trying to keep up with their own kiddo's to pay attention to mine. Oh how I miss those days!

Unfortunately reality set in and we had to stop taking Nick to Chuckie Cheese when he phased out of the "kiddo" age zone. Unlike other families we didn't stop because the never ending noises, lights and crowds were too much for Nick, in our case it was exactly the opposite we went for the chaos and Nick loved it! He loves all the lights, sounds, running kids, and the games that over stimulate his nervous system.  It's like a drug, a high for him. He loves the way it winds him up and he slowly spins into a frenzy, until he is jumping, spinning, drooling and exploding with uncontrollable laughter. He's escalates into a "Happy Frenzy".

In this overwhelmed state he hears nothing from the outside world, he loses all impulse control and just wants more, and more and more. The result is inevitably his flailing body gets the attention of other parents and kids as stare, grab their children and I can tell they are wondering if Nick is a danger to their children. Before I know it a space clears between Nick and everyone else and the reality that his excitement could prose a danger to the smaller kids becomes really obvious.  So we fade away, and go home. Then comes the slow and painful crash from his sensory high.  For days to follow Nick is agitated, unable to sleep, experiences bouts of aggression, and his repetitive behaviors escalate.  A terrible price to pay for loving a place.





Tuesday, June 6, 2017

Please take 5 Minutes to Improve the Lives of Children with Autism - and the families who love them!


THURSDAY the Senate and Assembly are finishing up final negotiations on the Budget and we have the first opportunity in years to possibly restore camping and social recreation, and lift the cap on respite.... but only if we call immediately!  

Nick at Camp, such an important experience! 
For those of you who are not aware, the Regional Center used to provide funding so our children, just like typical children, could enjoy social recreational activities, like summer camp!.  These supports were pulled from the budget and for the first time in at least 10 years we have a shot at getting them back. Will you help?

Everybody can contact the Governor and the Department of Finance (the state's accountants), and if you are also represented by a member of the Conference Committee, call them too. This is moving fast, and will be done by Thursday, so CALL TODAY!

(1) Click here and find your Senator and Assemblymember.
(2) If they are 
on this list, call their office and say "I am a constituent, and I support a Budget restoring camp and social recreation, and lifting the cap on respite services, to help people with developmental disabilities."
(3) 
Contact the Governor's office and also click here to email his representatives in the Department of Finance, and ask for this restoration!
(4) Everybody can also call two key leaders in the Legislature (Senate President Kevin de León, 916-651-4024, and Assembly Speaker Anthony Rendon, 916-319-2063) to say this matters to you! 
Why do we need these services back?

Respite reduces the stress experienced by families and oftentimes allows a trusted relative or friend to provide the service. Some families prefer camp or social recreation services because of the added benefit of group social opportunities for the individual while the family is taking a break from their care. For some, a blending of these services meets their needs best. In 2009, many services, including these, were cut to save money.

In a recent Budget hearing, Democrats and Republicans both said they understand just how valuable these services are to our community. They are interested in restoring them. But we need to put the pressure on to make sure this happens! And we have to act fast, because our chance ends Thursday, when the hearings are finished.

Everybody must remind the Governor, his accountants, Senate President Kevin de León, and Assembly Speaker Anthony Rendon, that bringing this back helps families!

Contacts everyone can make!

Key Legislators (if you are a constituent)

You can make a difference! Raise your voice to support bringing back these important services today.

(1) Contact the Governor, and also click here to email his representative in the Department of Finance.
(2) Tell legislative leaders Senate President Pro Tem Kevin de León (916-651-4024) and Assembly Speaker Anthony Rendon (916-319-2063) that this matters!
(3) Find out who your Senator and Assemblymember are. If they are on the list above, call them!
(4) When you contact any of these officials, say who you are, and that "I support restoring social recreation and camp, and lifting the cap on respite, to help people with developmental disabilities."