Showing posts with label sleep disorders. Show all posts
Showing posts with label sleep disorders. Show all posts

Wednesday, November 17, 2021

Autism and Sleep Deprivation - A Family Problem and New Study May Give Clues

Two things that don't go together in our house, sleep and Nick! Never have, maybe one day they will! 


A study published in  September's Sleep Medicine has developed and validated a new cut-off value for the Children’s Sleep Habits Questionnaire for autism (CSHQ-autism), a common tool used to screen for sleep difficulties in autistic children and adolescents up to 17 years of age.

Poor sleep is a side effect of  Autism you rarely hear about. Yet over time it drains a family as much as any aspect of autism and offers up a host of serious negative health consequences from heart attacks, to stroke to diabetes.  
Nick is 23 and he has NEVER been able to sleep through the night without assistance (Drugs both OTC/Prescriptions). Every night I put Nick to bed, then I put me to bed. I roll up in the sheets, settle in hoping that tonight will be the night I sleep all the way through! Around 2 AM, I hear Nick jumping, scripting language from videos, and vocalizing things that are not words, just sounds and yelling "Mom". So, no tonight is not the night.
 
This is my life, and as a result, I have been sleep deprived for his entire life. From birth he suffered gastrointestinal problems, and his tummy pain left we up all night trying to sooth him. As he approached18 months - before his diagnosis - he still was not sleeping. Instead of sleeping he would crawl out of his crib in the middle of the night, locate video's and play them. And it's been the same ever since. Nick is medicated every night so he can sleep. Despite medication, that should help him sleep for at least 8 hours - Nick is always one tiny sound or thought away from being wide awake. Nick goes to sleep thinking about video's and how he can get to them. I go to sleep making sure I've shut everything down, disconnected, and put everything away, including computers, TV's, tablets, Alexa, CD Players, Games that make noises and all things that can be used to play video's or repeat noises.
 When this began I never imaged it would continue for a lifetime, but it has. One more reason why it is so important for us to gain more understanding.


Wednesday, March 4, 2015

17 Tricks to Falling Asleep Faster - A must read for Mom's

One day I'm going to write an Autism Alphabet, and for sure the "S" will stand for Sleep Deprived! I have been sleep deprived since Nick was born and there is no end in sight. I have to sleep with one ear open, and that's when I get to sleep because Nick is a terrible sleeper. That said, I just had to click on a link that read: "17 Tricks to Falling Asleep Faster". What I didn't expect was this first paragraph that had me bent over with ironic laughter! 

Amazing, now I have an excuse for everything! LOL and TTH (the truth hurts). 

Research shows that being continually sleep-deprived makes you dumb, irritable, distracted, unhappy, and fat — among other terrible things.
But knowing that sleep is necessary, and the science behind why, just makes the feeling of lying awake at 3 a.m. worse.
To help the insomniacs among us get some rest, we gathered the best practices from sleep science. 
The experts call it "sleep hygiene." Here's a crash course. Read more: http://www.businessinsider.com/how-to-fall-asleep-faster-2015-2#ixzz3TS67IPbi

Tuesday, February 17, 2015

Up To 80% Of Children With Autism Have Difficulty Sleeping


Nick didn’t sleep when he was inside of me, now he is 16 and still can’t sleep without assistance. When most kids have drifted off to dreamland Nick is manic and bouncing off the walls. It’s a side of autism no one told me about until we had suffered for years. Found this and wanted to share.

Helping Your Child With Autism Get a Good Night's Sleep
 WEBMD
During the first few months of life, babies ease into a normal cycle of sleep and wakefulness. They gradually reduce the number of daytime naps they need and start sleeping for longer periods of time at night. But some children continue to have difficulty falling asleep or sleeping through the night, and the problem can persist long after children start school.
Sleep disorders may be even more common in children with autism. Researchers estimate that between 40% and 80% of children with autism have difficulty sleeping. The biggest sleep problems among these children include:
·         Difficulty falling asleep
·         Inconsistent sleep routines
·         Restlessness or poor sleep quality
·         Waking early and waking frequently
A lack of a good night's sleep can affect not only the child but everyone in his or her family. If you're bleary-eyed from night after night of waking up with your child, there are a number of lifestyle interventions and sleep aids that can help.
What causes sleep disorders in children with autism?
Researchers don't know for sure why autistic children have problems with sleep, but they have several theories. The first has to do with social cues. People know when it's time to go to sleep at night, thanks to the normal cycles of light and dark and the body's circadian rhythms. But they also use social cues. For example, children may see their siblings getting ready for bed. Children with autism, who often have difficulty communicating, may misinterpret or fail to understand these cues.
Another theory has to do with the hormone melatonin, which normally helps regulate sleep-wake cycles. To make melatonin, the body needs an amino acid called tryptophan, which research has found to be either higher or lower than normal in children with autism. Typically, melatonin levels rise in response to darkness (at night) and dip during the daylight hours. Studies have shown that some children with autism don't release melatonin at the correct times of day. Instead, they have high levels of melatonin during the daytime and lower levels at night.
Another reason children with autism may have trouble falling asleep or awaken in the middle of the night could be an increased sensitivity to outside stimuli, such as touch or sound. While most kids continue to sleep soundly while their mother opens the bedroom door or tucks in the covers, a child with autism might wake up abruptly.
Anxiety is another possible condition that could adversely affect sleep. Children with autism tend to test higher than other children for anxiety.
What kind of effects do sleep problems have?
Not getting a good night's sleep can have a serious impact on a child's life and overall health. Research has shown that, in children with autism, there is a connection between lack of sleep and the following characteristics:
·         Aggression
·         Depression
·         Hyperactivity
·         Increased behavioral problems
·         Irritability
·         Poor learning and cognitive performance
If your child isn't sleeping, there's a good chance you aren't, either. One study showed that the parents of autistic children sleep less, have poorer sleep quality, and wake up earlier than parents of non-autistic children.
How do I know whether my child has a sleep disorder?
Every child needs a slightly different amount of sleep. In general, these are the amounts of sleep children require, by age:
·         Ages 1-3: 12-14 hours of sleep per day
·         Ages 3-6: 10-12 hours of sleep per day
·         Ages 7-12: 10-11 hours of sleep per day
If your child regularly has difficulty falling asleep or wakes up repeatedly throughout the night, it might be a sign of a sleep problem. To know for sure, make an appointment with your child's pediatrician. The doctor may refer you to a sleep specialist or an ear, nose and throat doctor.
It can help to keep a sleep diary for a week to track how much and when your child is sleeping. You may include any snoring, changes in breathing patterns, or difficulty breathing. You can share this diary with your child's doctor and any specialist involved in treatment.
How can I help my child sleep better?
Sleep medications should only be used with children as a last resort . There are a number of lifestyle changes and natural sleep aids that can improve sleep time and quality for kids with autism:
·         Avoid giving your child stimulants such as caffeine and sugar before bed.
·         Establish a nighttime routine: give your child a bath, read a story, and put him or her to bed at the same time every night.
·         Help your child relax before bed by reading a book, giving a gentle back massage, or turning on soft music. 
·         Shut down television, video games, and other stimulating activities at least an hour before bedtime.
·         To prevent sensory distractions during the night, put heavy curtains on your child's windows to block out the light, install thick carpeting, and make sure the door doesn't creak.
·         Ask your pediatrician about giving your child melatonin just before bedtime. This dietary supplement is often used as a sleep aid to help people get over jet lag. It may help normalize sleep-wake cycles in autistic children who have sleeping issues, and research done so far finds that it's safe and effective.
·         Talk to a sleep psychologist about bright-light therapy. Exposing the child to periods of bright light in the morning may help regulate the body's release of melatonin.

WebMD Medical Reference
SOURCES:
WebMD Feature: "How Much Sleep Do Children Need?"
Richdale AL. Developmental Medicine & Child Neurology, 1999.
The National Autistic Society: "Sleep and autism: helping your child."
Meltzer LJ. Journal of Pediatric Psychology, 2008.
Andersen IM, Kaczmarska J, McGrew SG, Malow BA. Journal of Child Neurology, 2008.