Showing posts with label Sensory Integration. Show all posts
Showing posts with label Sensory Integration. Show all posts

Wednesday, June 28, 2017

Autism Goes Mainstream

Autism Goes Mainstream; Chuckie Cheese Goes Sensory Friendly Improving the Experience for Some Children with ASD. I'm not sure if this modification would have helped Nick, but it's a great thing for many children who have ASD accompanied by sensory processing disorder.  


Most people envision kids with autism with sensory issues as holding their ears, or not being able to tolerate the overwhelming stimuli of places like Chuckie Cheese, but that's not the only sensory response children with autism can have, and it's not the response Nick has.

Nick's first birthday party was at Chuckie Cheese, before he developed autism, and before I had a clue how the environment might be affecting him, and he sure seemed to love it. Then post diagnosis (Nick was diagnosed at 23 months) during his preschool and elementary school years Chuckie Cheese was the place to go.  It was a safe haven where his behaviors and noises for the most part just blended in with the general chaos. A place where the typical kids were acting like my spectrum kiddo, running, yelling, darting, jumping, slamming into one another and all was accepted.  Perhaps best of all, parents were too busy trying to keep up with their own kiddo's to pay attention to mine. Oh how I miss those days!

Unfortunately reality set in and we had to stop taking Nick to Chuckie Cheese when he phased out of the "kiddo" age zone. Unlike other families we didn't stop because the never ending noises, lights and crowds were too much for Nick, in our case it was exactly the opposite we went for the chaos and Nick loved it! He loves all the lights, sounds, running kids, and the games that over stimulate his nervous system.  It's like a drug, a high for him. He loves the way it winds him up and he slowly spins into a frenzy, until he is jumping, spinning, drooling and exploding with uncontrollable laughter. He's escalates into a "Happy Frenzy".

In this overwhelmed state he hears nothing from the outside world, he loses all impulse control and just wants more, and more and more. The result is inevitably his flailing body gets the attention of other parents and kids as stare, grab their children and I can tell they are wondering if Nick is a danger to their children. Before I know it a space clears between Nick and everyone else and the reality that his excitement could prose a danger to the smaller kids becomes really obvious.  So we fade away, and go home. Then comes the slow and painful crash from his sensory high.  For days to follow Nick is agitated, unable to sleep, experiences bouts of aggression, and his repetitive behaviors escalate.  A terrible price to pay for loving a place.





Saturday, July 4, 2015

Diagnosis: Smell Test Identifies Autism in 81% of Cases

Looking at smell as a possible diagnosic tool is great. In the "NOW" understanding and pushing information out into the world about the seemingly subtle differences, between those living with ASD and the typical population is the best tool we have to creating safe and productive environments. 
As a parent of a kiddo with autism I've watched my son's entire sensory system function in it's on unique way for years. He has under reactions to pain - so he has to be really hurt before he notices, he can't stand certain textures in his mouth, and having anything rubbed on his skin, or the sound of a siren is so painful it's torture for him. I typically explain Nick's sensory system as being like a music mixing board. Imagine most people's sensory responses both receptive and expressive (going in and heading out) are all mixed to be balanced at level 5 with a range of 0 to 10. Our kids however are scrambled; with their sight, sound, touch, taste, smell mixed within and even out side of the range. 
That said, here's what I get in this story. I get an opportunity for people to become aware of the dangers facing our kids. People ask me why Nick I doesn't use the gas range to cook, but I let him use the toaster, grills, the over and microwave. They are surprised when I say it's not about the heat, it's because he can't smell the gas - and would blow the house up. So thanks to this story maybe a few more people will get the connection...If a person with autism can't smell smoke, rotten food, or gas and identify those smells as dangerous they are vulnerable to dangers. ........Donna
Study finds children with autism don't react to good and bad smells
By Carina Storrs, Special to CNN
·         A study says children with autism spectrum disorder may be less sensitive to odors
·         Researchers developed a device to measure children's responses to good and bad smells
·         The device might one day help diagnose autism
(CNN)Children with autism spectrum disorder often have either an exaggerated or a numbed response to sight, sound and touch. This behavior is so common that it's one of the diagnostic criteria for the disorder.
Now, a new study suggests that children with autism might also experience smells differently from children who have typical development.
To explore how children with autism respond to odors, researchers built a device called an olfactometer, which delivered different scents through a small tube that fit into nostrils. A second tube measured how much air the children were breathing in during each scent -- in other words, how much of a sniff they were taking.
The researchers exposed 36 children -- 18 who had autism and 18 who did not -- to alternating bouquets of pleasant smells, such as roses or shampoo, or unpleasant smells, such as sour milk or rotten fish.
They found that children who did not have autism took a longer sniff for roses and a shorter one for rotten fish, and the difference in breathing happened quickly, within one-third of second of being exposed to the scent.
In contrast, children with autism did not change their breathing in response to the different aromas.
"What we measure, the sniff response, is quite intuitive (and) adults and children with typical development react similarly," said Liron Rozenkrantz, a doctoral student in neurobiology at the Weizmann Institute of Science in Israel. The difference found in children with autism was striking, said Rozenkrantz, who was lead author of the study published Thursday in Current Biology.
It is unclear from the study if children with autism did not have a sniff response because they didn't perceive odors in the same way other children did, or because they just couldn't control their sniffing behavior.
Still, the idea that differences in smelling could be a symptom of autism might not be news to parents of children with autism. There have been accounts from parents about children who want to sniff people or objects, or who choose their friends based on their odor, even when it's imperceptible to others, Rozenkrantz said.
It has been difficult to study smelling behavior in children with autism because tests often ask them to describe odors, even though difficulty in communicating is a hallmark of autism, Rozenkrantz said.
The olfactometer-based test takes about 10 minutes and does not require the children to answer any questions or complete a task. In the study, they wore the device while watching cartoons.
The researchers in the current study found that their olfactometer could accurately identify the autism status of 12 of the 18 children who had autism, and 17 of the 18 control children who did not have autism.
The ability of the device to correctly categorize autism in 81% of cases raises the possibility that it could one day be used as a way to diagnose the disorder. The fact that it does not require a verbal test means that the olfactometer could be used in babies as young as a few months old, Rozenkrantz said.
However the average age of children in the current study was 7. For the device to become a method for early diagnosis, it would first have to be tested in young babies, and babies identified as being at risk of autism would have to be followed into childhood to see if they actually developed the disorder, Rozenkrantz said.
Research has shown that early behavioral interventions for young children at risk of autism could improve their development. Most children are not diagnosed until age 4 or older and have missed a key window to get help.
"It's way too early to say whether this could be helpful in diagnosing autism," said Dr. Paul Wang, senior vice president and head of medical research for Autism Speaks, an autism research and advocacy organization. Wang was not involved in the study.
In order to be used as a diagnostic tool, the device would have be tested in more children and also show that it can identify autism in more than two-thirds of children with the disorder, he said.
However the current study does give some idea of olfactory symptoms that could be occurring with autism, Wang said.
"I think this really fits well with increasing research on general sensory symptoms in autism," he said.
The researchers saw that children who had a dampened sniff response were more likely to also have deficits in communicating and socializing, but were less likely to have repetitive behaviors, which are the other hallmark of autism.
Differences in sensory reactions have previously been thought of as part of the repetitive behaviors of the disorder, but "this is an interesting study that suggests that the senses are more tied to socio-communicative behavior," Wang said.
These findings could also provide some clues as to why many children with autism have trouble eating.

"It could be muscular problems, with swallowing and chewing, but smell is a big part of taste and children with autism may not perceive smell in the same way as other children," Wang said.

Monday, March 2, 2015

#The Dress Gives Insight to Autism

The first time I heard the "White/Gold" and "Blue/Black" dress debate, I thought "Dah! The dress is Gold and White, what's the big deal. Some folks are just color blind!".   Then I showed it to Evyn and Nick. Evyn saw what I saw, but Nicholas saw Blue and Black!  Of course he did :)  LOL. Then I found this article about sensory intregration and I could not agree more. http://www.buzzfeed.com/virginiahughes/thedress-reveals-something-pretty-profound-about-autism

BTW: I also moved the laptop around so I could see the dress from different angles.  And there was one angle where the dress was in perfect focus and I saw Blue and Black!  WTHeck, perception is so complicated.


Friday, February 13, 2015

Sensory Solutions for Teens and Adults!

"Yogibo" a giant pillow designed to give big kids the sensory input they need!

Nick is 5'10", 170lbs and needs full body pressure to calm and organize his body. When he was younger there were so many choices from park swings to mini trampolines to indoor suspended equiptment.  Now he's too big for bean bags, and when he leaps (actually he agressively throws himself) onto a bed or couch, I cringe knowing he's going to break something!

Until recently I had taken to covering him with big pillows and then sitting on him, which seemed wrong on so many levels! LOL 

Recently I introduced the "Yogibo" and he loved it! It is super dense and sturdy enought to take all Nick can dish out, which is alot! Seems it is well worth the investment as he can keep it for years to come, it makes him happy and I'm sure it's going to save our funiture.

BTW:  The only drawback is finding a place to keep it when it doesn't have a kid on it. I just stand it up in a corner and ignore it :).  

Tuesday, September 16, 2014

VISION, HEARING OUT OF SYNC FOR KIDS WITH AUTISM, STUDY SAYS

Once again, Science is catching up :).




Wednesday, September 10, 2014
The latest research shows one in 68 children will be diagnosed with autism. Many of these kids struggle with making friends, communicating with others, and social interactions in general.

While no one yet knows what causes autism, scientists at Vanderbilt University are finding out exactly what's out of sync when children with autism try to express themselves and communicate with others.

"Generally I would describe having asperger's syndrome as being like a computer that's running a different operating system than what most computers are running," said 16-year-old Austin Miller, who has asperger's.

Diagnosed at age 12, his mom Karen says she's always noticed a delay in the way he processed speech.

"I would say something to him and then I would say, 'Austin, did you?' and then he would start to answer. And so I learned, I have to give him more time," she said.

Now a new study is helping explain why. Headed up by Dr. Mark Wallace, a team at Vanderbilt found what kids with autism see is out of sync with what they hear.

"It's like a badly dubbed video is the way we describe it," said Wallace.

In some, the timing can be completely off.

"And we believe that, that change in the binding of visual and auditory information is sort of the foundation for the problems that they have in things like language and communication and social interactions," said Wallace.

That sounds spot on to Austin.

"I think I can see a couple memories where I'm talking to my dad and maybe his mouth just looks a little bit out of sync," he said.

Researchers are building on that knowledge by testing a new interactive video game that's designed to retrain the brains of those with autism, focusing on how rewards help the brain.

"So it basically takes the tuning of the nervous system and shapes it, so that they get better," said Wallace.

The ultimate goal is to help kids like Austin communicate better.

The study also helps explain why some children with autism are often seen covering up their ears or eyes; it could be the delay in sight and sound that confuses them and makes them focus on one sense at a time.

Friday, June 7, 2013

Autism and Sensory Integration Foundation: San Fernando Valley Event - Good Resource for Families seeking info in this complicated area :)

CHRIS & CHAYA’S DAY OF FUN!!

date:              saturday AUGUST 24th
time:              1:00 PM – 3:30 pm
place:           ENCINO COMMUNITY CENTER
MAIN AUDITORIUM
4935 BALBOA BLVD.
encino, ca 91316

Come to a community day dedicated to the high-functioning child and their families


·        GAMING COMPETITION (Angry Birds ®): Prizes awarded for top scorers during our gaming competition (Angry Birds), so kids, bring your tablets!!

·        Arts and crafts/FIRE TRUCK:  Everyone can draw, paint, and color. The Los Angeles Fire Dept. will stop by too!

·        tHE “ORIGINAL” ICED BLENDEDS BY COFFEE BEAN & TEA LEAF® PREPARED BY CBTL BARISTAS!

·        Service providers:  There will be Autism, Sensory Integration and Related Disorder therapists providing information to families on latest therapies available and giving advice for specific issues families are experiencing.  A variety of service provider information will also be available at tables in the auditorium.

·        FOOD, DANCING, AND MORE!!

ALL donations to  are tax deductible to the fullest extent allowed by the IRS for organizations with the 501(c)(3) designation.  EIN #45-3046244