Tuesday, January 27, 2015

Critical Advocacy Tool Goes Online!!! The Lanterman Act Crosses into the 21st Century! Good News for All :)

The Lanterman Act crosses into the 21st Century! Good news for all :) Call me crazy, or cra cra if you prefer, but I was flat our excited to see this document make it online. It's a critical tool for all CA families who need to know their rights!  


The 2015 Lanterman Disabilities Act is now online!

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At a time when budget cuts are trying to take away services, our best chance at protecting them and our children is to know our rights and now we can do that a little easire!  BTW some amazing families fought to make the Lanterman Act happen when the only option for our kids was an institution. If you have not seen this video, grab a hanky have a seat, and check it out.  

We Can't Forget The Past! Watch this documentary “We are Here to Speak for Justice”



If you don’t read this piece, watch this documentary  
"We're Here to Speak for Justice"   http://www.lanterman.org/uploads/videos/video_werehere.html.  Here’s the link…please give it another go!  (new link 8/1/2011)



Monday, January 26, 2015

Boy’s Inspiring Video Shows How He Overcame Autism Odds

Boy’s Inspiring Video Shows How He Overcame Autism Odds

by  - 
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After diagnosing him with autism when he was a toddler, doctors told Michael Whary’s parents that he would likely never drive a car or even ride a bike, but this high-achieving teen has proven them all wrong.  http://www.goodnewsnetwork.org/boys-inspiring-video-shows-overcame-autism-odds/
He plays piano, joined the marching band as a trumpet-player, competes with the track team and takes advanced classes in the Honor Society.
Scouting is one of his favorite activities and Michael chose as his Eagle Scout service project to create an inspiring video for parents of autistic kids.Lego braille printer-Banerjee-family photo
(WATCH his video below or READ the story at Yahoo News)

Wednesday, January 21, 2015

2.5 Million Readers Pick Top Posts for 2014

Autism Day By Day - 2.5 Million Readers Pick Top Posts for 2014
What a year! Autism Day by Day became an official National Institute of health resource and more than 2.5 million of you logged onto Autism Day by Day. When the year was over you had unanimously picked the following posts to make up the top 20 reads! Your favorites covered every topic from Bullies to Puberty, Police to Cover Up's at the CDC, Joy of Surfing to Statistics, Employment and what makes us really mad, these are the posts that got your attention.  

MIT Reports 1/2 of all US Children will have autism by ..

A Candid Conversation with A Cop - Be afraid!

​​National PSA address's Autism Related Wandering; Spread the Word!

Bullies without Boundaries!
 
Puberty, Part II Managing Masturbation! A must read for Moms

11 Ted Talks to a Happier Life! 
  
CDC Vaccine Cover Up Reported

Disney Faces More Heat in Autism Lawsuits

A Must See Video!  Autism + Surfing = Pure Joy!

Police and Autism a Dangerous Mix

​​​Autism Online Job Board

Disney Law Suit

There may soon be a way to genetically test children for ASD


Why "Retarded Needs to Be Retired"

Employment Improves Autism Symptoms

Autism and Meditation - A good mix!


Monday, January 19, 2015

Coping: Autistic Through Association - Autism, Moms and Isolation

Autistic Through Association

"I did not line up cars, but I had evolved into a person with autistic traits - narrow interest, poor social skills, low frustration tolerance  & perseverative behaviors!" 

I have spent the better part of the last 14 years like a fish, submersed in my ocean, not of water but autism. The size, scope and impact of life in my ocean continually unfolds and never ceases to surprise me. 

I had no idea how difficult it would be to reinvent myself, and relate as a grown up outside of my autism existence until it came time for me to go back to work. I'd was used to fighting for my son everyday, battling for care, dealing with the day to day changes in care, taking him to appointments and chasing down services. I didn't do normal people things I spend my days sitting on the floor with him, living in Yoga pants, wearing no jewelry or make up and keeping my hair in a pony tail so my son wouldn't pull it out!  I was a autism mom, a warrior, in the fight on the front lines for almost 13 years. Re-entry was so rough and slower than I imagined.  I had lost my sense of humor, forgot how to "chill out", I had no hobbies, no mate, I was behind on politics and world affairs. I had no idea how to "be" how to act. I was lost!

For anyone who does not know, autism isn't just something that comes into your world, it becomes your world, your entire environment; it's everywhere, everything. For me, for years it was the tread that ran through every moment, activity, relationship and conversation. It was all I talked about, thought about, it was infused in my dreams, nightmares and in all I did. Autism became my daughter's, my mom's, siblings, co workers and friends. If you knew me you were swimming in my ocean, living with autism. 

I evolved to adapt to my new environment; I became disinterested and eventually incapable of having a conversation about anything else. People who were not talking about autism, lost me right after "hello". Autism had to be a part of the conversation or I was out, I had nothing to say. As a result my friends and family who did't adapt and couldn't live submersed in my ocean, quickly faded away.  

I was living in a tiny world of my own design, living a life of isolation. My son wasn't the only one living a life of autism - I had become autistic through association. I did not line up cars, but I had developed an autistic traits - narrow interest, poor social skills, and perseverative behaviors, I was isolated and I was no longer typical!

I had one false start after another, adjusting and adapting.  Everything I've described mixed with Nick's continual need for care and my guilt for trying to pull away; to work to support us and take care of myself only made the process harder, and longer. 

It took just over 4 years from when I first said I was going back to work, until I was really back to work.  
The guilt about working is controlled (not gone) by the reality that if I don't support us, no one will. 

The guilt about taking care of myself is smacked down when I realize, a sick me won't be of any good to them, and I want to be here as long as I can to look our for my children.

The guilt about doing things for me is, nobody wants a resentful needy mom. I know caregiver is going to be a lifelong job for me, and we all know that caregivers die young. My solution is to make sure I have some fun (however I define that) and build a life outside of working mom and caregiver, which will help me to be a happier person and a better mom. Or so I think.

We can do this! 

Friday, January 16, 2015

Spread the Word! The International Day of Acceptance is January 20, 2015!

SPECIAL EDITION


Spread the Word! The International Day of Acceptance is January 20, 2015!
How will you celebrate this important day? On January 20, embrace the beautiful uniqueness of each and every member of the disability community by spreading the message of acceptance as far as you can. Learn how to get involved, share your #DayOfAcceptance story and let the world know what acceptance means to you! Here's how…

Permobil: The Power of Mobility
Pride Performance Mobility
Quantum Rehab
BraunAbility
Call David Korse at 310.450.8831 x3 to find out how you can sponsor the Abilities Buzz.


Buzz


Upcoming Expos
Los Angeles
March 6-8, 2015
Los Angeles Convention Center
New York Metro
May 1-3, 2015
New Jersey Convention & Expo Center
Chicago
June 12-14, 2015
Schaumburg Convention Center
Houston
July 31- Aug 2, 2015
NRG Center (Formerly Reliant Center)
Boston
September 18-20, 2015
Boston Convention and Exhibition Center
DC Metro
December 4-6, 2015
Dulles Expo Center

Wednesday, January 14, 2015

Facebook to Issue Missing Children Alerts in US

As a parent of a child who's at risk of going "missing", I am so excited to see this collaboration happen. I had the pleasure of producing a PSA for the National Center for Missing and Exploited Children to increase awareness of Autism related wandering and I can't say enough great things about this organization. They lead and they get things done. Support them! Spread the word...and watch the video http://autismdaybyday.blogspot.com/2014/09/help-get-word-out-share-this-psa.html.  Like they say "Bring a child home safe today!" 


Facebook to issue missing children alerts in U.S.
CREDIT: REUTERS/DADO RUVIC
 (Reuters) - Social networking website Facebook (FB.O) plans to use its estimated 140 million daily U.S. users to help track missing children through emergency alerts, the company said on Tuesday.
Facebook partnered with the National Center for Missing and Exploited Children to immediately begin sending AMBER Alerts, including photographs and other details, to the news feeds of users in targeted search areas.
"The chances of finding a missing child increase when more people are on the lookout," Emily Vacher, trust and safety manager at Facebook, said in a statement. "Our goal is to help get these alerts out quickly to the people who are in the best position to help."
AMBER Alert is a voluntary program coordinated by the U.S. Department of Justice in which emergency messages are issued by law enforcement, broadcasters and other agencies in cases of serious child abductions.
U.S. Attorney General Eric Holder on Tuesday said expanding the alerts to Facebook would raise the chances of saving abducted children, who can be in increasing danger the longer they go missing.
"The more vigilant the citizens we have on the lookout, the better our chances of a quick recovery," Holder said in a video statement.
The AMBER Alert program launched in 1996 after the kidnapping and murder of 9-year-old Amber Hagerman in Arlington, Texas.
Hagerman's family worked with local radio stations to broadcast alerts about kidnapped children following her death.
(Reporting by Laila Kearney; Editing by Bernard Orr)

Tuesday, January 13, 2015

Ageing in 2015 - A Perspective LOL!!!


My mom sent me this and I had to share! Well, we do not age that much.  It is that one more year is about to be over and a new bright, wonderful, healthy and wealthy year 2015 is upon us.  Keep the 2014 good memories, and start the New Year with good sense and good humor.  
P.S. BTW, Mom I could not help but find some pictures to go with these wonderful words :) 


  • Wouldn't it be great if we could put ourselves in the dryer for ten minutes and come out wrinkle-free and three sizes smaller.
  • Last year I joined a support group for procrastinators.  We haven't met yet.
  • I don't trip over things, I do random gravity checks.
  • I don't need anger management.  I need people to stop driving me nuts!
  • Old age is coming at a really bad time.
  • When I was a child I thought Nap Time was a punishment ... now, as a grown up, it just feels like a small vacation.
  • The biggest lie I tell myself is ..."I don't need to write that down, I'll remember it."
  • Lord grant me the strength to accept the things I cannot change, the courage to change the things I can  and the friends to post my bail when I finally snap.
  • I don't have gray hair.  I have "wisdom highlights."  I'm just very wise.
    The Glass half full! 
    Glass half empty!!!















  • My people skills are just fine.  It's my tolerance to idiots that needs work.
  • I'm going to retire and live off of my savings.  Not sure what I'll do that second week.
  • Even duct tape can't fix stupid ... but it can muffle the sound!
  • Why do I have to press one for English when you're just gonna transfer me to someone I can't understand anyway?
  • Of course I talk to myself, sometimes I need expert advice.
  • Oops! Did I roll my eyes out loud?


Have a wonderful new year 2015, enjoy life, be safe, be healthy, make happiness your best friend. 

Friday, January 9, 2015

A MUST WATCH VIDEO!!! What Happened When Young Boys Were Told To Hit A Girl?


Every boy should watch this video, especially our boys!  I found this and I loved it. I showed it to Nick and he loved it, he got it. I used it to help him verbally express his feelings about girls. It was a beautiful site to behold. Watch this, love it, share it for the good of both our boys and our girls!  

What Happened When A Bunch Of 

Young Boys Were Told To Hit A Girl?

What Happened When A Bunch Of Young Boys Were Told To Hit A Girl
What happens when you ask young boys to hit...

Monday, December 29, 2014

Half Of All U.S. Children Will Be Autistic By 2025 - MIT Researcher’s New Warning

MIT Researcher’s New Warning: At Today’s Rate, Half Of All U.S. Children Will Be Autistic By 2025




Research scientist Stephanie Seneff of the Massachusetts Institute of Technology (MIT), a widely published author on topics ranging from Azlheimer’s Disease to autism and cardiovascular disease, raised plenty of eyebrows recently with a bold proclamation on autism at a special panel in Massachusetts about genetically modified organisms and other topics.
“At today’s rate, by 2025, one in two children will be autistic,”  Seneff said last Thursday in Groton, MA at an event sponsored by the holistic-focused Groton Wellness organization.  
Seneff presented slides showing a remarkably consistent correlation between the rising use of Roundup (with its active ingredient glyphosate) on crops and the rising rates of autism; while it doesn’t show a direct correlation it does give researchers plenty to think about, especially considering Seneff’s research into the side effects of autism that mimic glyphosate toxicity and deficiencies.
gloysphate
The slide notes that the heaviest use of Roundup, Monsanto’s flagship weedkiller, began in 1990 and continued to rise since. Meanwhile, the  number of kids with autism has gone from 1 in 5,000 in 1975 to 1 in 68 today, a puzzling and frustrating stat that shows no signs of slowing down and one that correlates strongly with the rise in glyphosate use.
Of course, autism is a complex problem with many potential causes, but the numbers are particularly of note considering how close the correlation is, and Seneff’s credentials.
Dr. Seneff has written 10 papers (7 as the first author) in various medical and health journals on modern diseases as well as drug side effects, nutritional deficiencies and the impacts of environmental toxins on our health. She also worked as a Senior Research Scientist at the MIT Computer Science and Artificial Intelligence Laboratory before turning to biology, as her official biography notes.
You can read more about her presentation on the website The Complete Patient by clicking here, and you can also check out the full versions of her slides on glyphosate and autism by clicking here.

EPA DEBATING ROUNDUP BAN OR RESTRICTIONS, ARE THEY BEING OBJECTIVE?

Recently, the group Moms Across America visited with officials from the EPA to discuss a potential ban or restrictions on Roundup, especially in light of recent findings that the active ingredient glyphosate is found in the breast milk of American mothers at levels that are a dangerous 760 to 1600 times higher than allowable limits in European drinking water.
While the group made its point loud and clear, it is well worth noting than many of the 100 studies provided for the EPA’s review were actually provided by the chemical companies themselves.
Urine testing has also shown that Americans have 10 times the glyphosate accumulation in their urine than Europeans, and children with autism have many biomarkers indicating excessive glyphosate in their systems including key mineral deficiencies, seizures and mitochondrial (the cell’s power center) disorders.

SENEFF RESPONDS TO MONSANTO’S KEY ARGUMENT

While Monsanto claims that Roundup is harmless because humans don’t have a shikimate pathway, which it inhibits, Seneff notes that our gut bacteria do have this pathway, and that’s crucial because these bacteria supply our body with crucial amino acids.
She also says that most studies are too short to show Roundup’s oft-studied effects as a cumulative toxin, one that builds up both in the environment and in our bodies over time.
According to Seneff, Roundup has the following side effects: it kills beneficial gut bacteria, allowing pathogens to grow; interferes with the synthesis of amino acids and methionine which leads to shortages in critical neurotransmitters and folate; chelates (removes) important minerals like iron, cobalt and manganese, and much more.
Additional chemicals in Roundup are untested because they’re classified as “inert,”she notes in her presentation, butaccording to a 2014 study in BioMed Research International they are capable of amplifying the ill effects of Roundup hundreds of times over.
To learn more about Seneff’s warning over autism and Roundup accumulation, you can view her slideshow on the topic. Until then, it’s best to exercise caution, and to buy and grow organic food whenever possible.
Dr. Stephanie Seneff, senior researcher at MIT, speaking at this year’s Autism One conference: