Showing posts with label ABA. Show all posts
Showing posts with label ABA. Show all posts

Monday, December 6, 2021

How to Make Sure Kids With Autism Reach Their Potential

Slow and steady and never give up! 


When Nick was 8 years old a behavioral agency informed me they would be ending his program. When I asked why, I was told in their professional opinion he had plateaued. 


I will never forget how this so called expert stood before me, straight faced , emotionless and explained how children with Autism reach their potential around age 5 after which they don't expect to see much progress or significant change and they believed this to be he case with Nick. I was so angry. I literally yelled at her "Plateaued!!!. On what planet does any human plateau at 8!" 


How dare anyone who is charged with helping children, pass this information on as if it was fact. If I had been another mom, I might have believed this "Expert" and given up right then and there and robbing my child of the opportunity to become his best self. Instead, I refused to let anyone tell me my son was without potential and his developmental life was over. I mean who writes off an 8 year old! 

I am so glad I did not listen, because she could not have been more wrong! 

For the past 21 years we have worked everyday to expand Nick's capabilities and it has paid off. When he was 8 going to the dentist meant being totally restrained. Today he sat in the dentist chair unrestrained, as the doctor drilled and filled his first cavity. Not a scream, or a dangerous wiggle, or any breaks to get the job done!

I know his progress does not look like a typical kiddo, it looks like Nick, slow and steady, up and down, forward and back, but in the end all small steps forward. Our goal is to help Nick become as independent as possible and the version of him he can be, not he best version of anyone else. We constantly introduce new things, repeat known things to help him achieve mastery. We always keep in mind, just because he didn't like it at 6, doesn't mean he won't like it at 8 or 10. Or just because he couldn't do it at 12 that doesn't mean he won't be able to do it at 20. We just keep going slow and steady until suddenly we notice a thing...

"Nick followed 3 multistep instructions independently."
"Nick used a full sentence, unprompted."
"Nick did great in the dentist office today." 
"Nick made breakfast all by himself." 
"Nick was not aggressive today."
"Nick offered to share his food."
"Nick just worked independently for 1 hour." 
"Nick figured out how to work the paper shredder by himself."
"Nick made his bed without any assistance."
"Nick did all of chores without any prompts."

These success's may not sound like much to all parents, but for me and Nick they mean the world, literally. Every one of these achievements is directly connected to Nick's independence and his independence is connected to his quality of life including how much time he spends in the community. 

It has not been easy. That said, he had not plateaued then, and at 23 he has still reached his "Plateau".  Nick is a human being and just like the rest of us, when given the opportunity to learn he will. It's been a lot of work for me and Nick, but I am so grateful I didn't accept that my 8 year old Nick had plateaued.  



Thursday, October 12, 2017

New Bill Fast Tracks Behavioral Services for Individuals with Autism

Assembly Bill 1074 FastTrack’s Behavioral Services to Improve Services for Individuals with Autism

Governor Brown signs Assembly Bill 1074 updates California’s autism mandate providing for clinical case management, removes the requirement for professionals to be vendored by state regional centers and lifts experience requirement for paraprofessionals.
California Governor Jerry Brown has signed Assembly Bill 1074, a bill authored by Assembly Member Brian Maienschein (R- San Diego) and co-sponsored by California Association for Behavior Analysis (CalABA) and the Center for Autism and Related Disorders (CARD). The bill received overwhelming support from both the California Assembly and Senate....   more

In addition to technical changes, AB 1074 removes the requirement for autism treatment professionals to be vendored with a state regional center and clarifies that evidence-based autism treatment includes clinical case management. Additionally, the bill removes a 6-month experience requirement for paraprofessionals who work one-to-one with individuals affected by autism spectrum disorder (ASD), a requirement that has limited the capacity of California’s autism treatment providers to meet the needs of California’s autism community.
Many families impacted by autism appreciate the need for service providers to have more flexibility making it possible to swiftly serve families in need, especially those seeking early intervention services. Families with older children remember the days when untrailed staff were labeled paraprofessionals and deployed to provide critical ABA services.  Because these guidelines where initially put in place to protect those affected by ASD, there is concern about the quality of care as guidelines are loosened and paraprofessionals are no longer required to have 6 months of prior experience to work one of one with an individual affected by ASD.
California is home to more autism treatment providers than any other state; yet, individuals diagnosed with ASD often encounter delays and waiting lists when seeking medically necessary treatment.
“When my son was diagnosed 17 years ago service providers sent untrained or undertrained staff in an effort to meet the explosive demand. I remember a 19-year-old tennis coach showing up to our home. She possessed no understanding of individuals with autism, and her only training was 1 day in a single ABA styled table top activity drilling a child on colors. These sessions were unproductive, a waste of taxpayer dollars and critical development time in my son's life. It is exciting to know so many people today are working to improve the systems of care for individuals with autism, and I embrace the progress. We will know in time if these changes to AB 1074 increase the number of working paraprofessionals and still ensure each child – including those in underserved communities – is receiving the evidence-based programs they deserve” said Donna Ross-Jones Author of Autismdaybyday,  Co-Founder Special Needs Network.
 “I’m gratified to have had the opportunity to increase access to treatment for individuals affected by autism. This bill clarifies California’s autism mandate to ensure behavioral health providers are not hindered by outdated requirements,” said Assembly Member Maienschein.
The Centers for Disease Control and Prevention (CDC) estimates that one in every 68 children in the U.S. is diagnosed with ASD, with one in 42 boys and one in 189 girls diagnosed. These 2014 figures represent a 30 percent increase since 2008. As the prevalence of ASD has increased, services for individuals with ASD have not always kept pace with demand. The increase in autism diagnoses and the lack of resources leaves some families struggling to access the services that are crucial to their child’s development.

"On behalf of our membership and the thousands of families they serve, we are grateful to Assembly Member Brian Maienschein for his leadership on this issue. The language included in AB 1074 will remove unnecessary barriers for providers and provide increased access to care for the vulnerable population receiving crucial behavioral health treatments," said Matt McAlear, executive director of CalABA.


Friday, January 27, 2017

Why Grooming Chart 4 Teens is Hotter than Taylor Swift

Because Nick's personal care should never be the reason people - including hot girls!- shun or make fun of him! 


I can't stand it when Nick has dirty teeth, ashy skin, smells bad or has messy hair. I know he's not trying to get a date, but still there is no reason for him to look a hot mess.  And, as much as Nick is attracted to girls, he lacks the social understanding that stinky is a girl repellent! This is one chart I use that works.  He's got it down now, all I do is say "Checklist"

Feel Free to print and share!

Tuesday, September 22, 2015

Being Invisible is Deadly; 19 Year Old with Autism Left on School Bus Dies.

“I feel like, we are nothing," she said. “They killed my son. Technically, they killed my son.”  Eun Ha Lee


It’s taken me days to respond to this horrifying event, because every time I think about it, I hear his mother’s words “I feel like, we are nothing," “They killed my son. Technically, they killed my son.”

The reminder of how vulnerable our kids are, and how easy it is to neglect them and how fatal the consequences can be, was just too much for me to take in.  When Lee’s mom through her tears said "We live in a tomb now." I felt her grief and all I could think was by the grace of God go I.  

Reading he was probably just following directions drilled into him over the years "Wait until someone comes to get you" hit too close to home because my son has been "trained" in the same way. Training that is good and often all we can offer, yet in this case may have been a factor in this young man losing his life, left me feeling vunerable in a way I never had before.

Again, families I say” be afraid, be very afraid”. Not because we want to live paranoid, but because the fact is our children face all the dangers any child faces in the world nd more. Dangers from all angles. Last week Nick started eating raw bacon! Raw Bacon and his aid didn't notice. Until that moment I didn't realize the degree of Nick's lack of food safety, which could have dire consequences. 

Our schools, systems of care and communities alike are all working to include the growing autism population and the truth is the process is not perfect, it is flawed and full of gaps, and who knows how long it will take to build infrastructures that support this population, if ever. 

As parents and caregivers we know the dangers don’t stop as our children mature, but persist keeping them are risk throughout their lives. So it’s on us to make this a safer world for our kids. I’m thinking the more I do know the better it will be when I am not here to watch over him. Don’t get me wrong, I know there is no way we can ever be sure our children are safe, typical or special needs. We can’t guarantee anyone’s safety, that’s in the hands of a higher power and it is a concern all families and caregivers share. The only thing we can do is take every precaution to keep them safe. We can learn from the tragic death of Hun-Joon Lee and double check all our personal protocols and the protocols of the people who serve and support our children. This way if any of us are met with a tragedy of this magnitude, and the fact is some of us will be, we will know we did the best we could and we will not add the weight of regret to our already burdened shoulders.


My prayers go out to this family. 
Donna 

www.nbclosangeles.com/.../Special-Needs-Student-Found-Dead-o...

Friday, January 9, 2015

A MUST WATCH VIDEO!!! What Happened When Young Boys Were Told To Hit A Girl?


Every boy should watch this video, especially our boys!  I found this and I loved it. I showed it to Nick and he loved it, he got it. I used it to help him verbally express his feelings about girls. It was a beautiful site to behold. Watch this, love it, share it for the good of both our boys and our girls!  

What Happened When A Bunch Of 

Young Boys Were Told To Hit A Girl?

What Happened When A Bunch Of Young Boys Were Told To Hit A Girl
What happens when you ask young boys to hit...

Tuesday, October 28, 2014

PRT Get's Results for Autism - That's the good news...

I am a big fan of both Dr. Koegel and PRT - and I am frustrated that it is so hard to find agencies who provide behavior services who have staff with good training in this intervention. Any idea's for this LA mom?  Anyone working with an agency who's nailed this?  Please let me know via email at autismdaybyday@gmail.com!
Thanks in advance :)

KOEGEL AUTISM PRT
Study co-authored by Lynn Koegel of the Koegel Autism Center at UC Santa Barbara shows effectiveness of Pivotal Response Treatment (PRT)®


Friends and Colleagues,

We have some exciting news to share with you! A study in the Journal of Autism and Developmental Disorders co-authored by Lynn Koegel, Clinic Director of the Koegel Autism Clinic at UC Santa Barbara, offers findings that contribute to the overall body of literature supporting Pivotal Response Treatment (PRT). Appearing in the Journal of Autism and Developmental Disorders, the paper, co-authored with Fereshteh Mohammadzaheri and Mohammad Rezaee, from the Hamadan University of Medical Sciences and Health Services, Hamadan, Iran, and Seyeed Majid Rafiee from the Institute for Cognitive Science Studies, Teheran, Iran, is entitled “A Randomized Clinical Trial Comparison Between Pivotal Response Treatment (PRT) and Structured Applied Behavior Analysis (ABA) Intervention for Children with Autism.”

    Thirty children diagnosed with autism, 18 boys and 12 girls, ranging in age from 6 to 11 years, participated in this study. The children were randomly paired and assigned to either a group where they were treated with traditional applied behavior analysis (ABA) methods or with pivotal response treatment. After three months of intervention, the data showed that the PRT approach was significantly more effective in improving targeted and untargeted areas. The children in the PRT group saw greater gains in social communication skills, as well as overall gains in pragmatic skills, including inappropriate initiation, coherence, stereotyped language, use of context, and rapport.

“With large numbers of children being diagnosed with autism, intervention procedures that are more efficient are both time and cost effective,” the paper concludes. “As well, procedures that speed up the habilitation process are important for children with ASD [Autism Spectrum Disorders], particularly if they produce widespread gains beyond the specific treatment goals.”

Friday, September 19, 2014

ASD.. Street & Community Safety; ASD and Teaching Safety Instruction Part 1



https://www.youtube.com/user/AutismDayByDay/videos

This is an ABA approach to priming safety in the community as taught by Nick's team. We are having a very rough time with safety, so we created this tool. It's a 6 part short video maybe it will help you too. 
Donna

Priming Before the Dentist: A Video to help our kids prepare and lower anxiety.

It's been a slow process but every year the visits to the dentist get a little easier, no doubt because Nick knows they are not going to kill him! Or maybe he's just learned what to expect :) Here's a video that might be good to show to kids in preparation for a trip to the dentist.

http://youtu.be/ZCMHGHox95s

Wednesday, May 14, 2014

Keeping Our Kids Safe on the Streets




We Can't Master Street Safety!  

Teaching Nick street safety has been one of the hardest skills to teach yet!  His lack of understanding danger, his short attention span and how easily he is distracted or just in his head all combine to make teaching safety a nightmare for us. We've done all kinds of things to teach street safety; from playing Red Light Green Light and having his sister smash into him when he moved on a red light, to walking intersections over and over.  Now we are back to trying to reach via Video (since video's are Nicks favorite thing(. 

We made our own videos so he could hear and see things he is familiar with. I posted them online. Maybe they will work for you, or serve as a  guide to follow.   

Now we have expanded to other online resources...



If you have any tips on what has worked for your family, please post them in comments!

Friday, February 7, 2014

Puberty Part III - Managing Masturbation "Go Squish In Your Room" Is Working!!!

"Go Squish In Your Room" Is Working!!!  

Continuing on the topic of puberty, specifically as it relates to my son and his private parts; I'm happy to report that our strategy to contain a certain behavior to a designated place is working!  If you've not faced the upset of inappropriate behavior in public with your kids, this may not seem like a big deal, and I get it. However this has not been the case for me. This aspect of puberty has been very upsetting for me and my family and finding a solution feels like a giant victory. We not just solved the problem of this moment, we've created a self management skill that will help to keep him safe for a lifetime. 

This is the plan we put into place after deciding the school bathroom was not where Nick could respond to his hormone driven urges :).

Operation SQUISH

Step one: Give the behavior a name.
We named it "Squishing" because pillows tend to be involved.

Step two: Create a safe and acceptable place for "Squishing", all the while treating Nick with respect.
We choose his bedroom, with the door closed.

Step three:  Introduce the term.
In our case Nick was open for touching his privates anytime and anyplace. So teaching him the name for it was easy. Every time he began the behavior we named it, by saying "No Squishing" if we were out of the house or "If you want to Squish, go to your room" if we were at home.

Step four:  Implement the Rule.
The rule is "Squishing in your room only with the door closed". As soon as we knew Nick understood the rule, we began by prompting him whenever we saw him begin the behavior "If you need to Squish please go to your room".

Step four: Drop the Prompt.
Three weeks after introducing it Nick began asking to go to his room. We didn't instantly know it was because he wanted to go Squish, but we figured it out pretty quick. He was implementing the rule on his own, and we were able to drop the prompt.

Now with an occasional reminder and he's totally self managing!!! Yippee.

Good luck moms and dads!

FYI...Mom's don't look up Managing Masturbation in Google as a way to get more info! You'll find out really fast the shocking power of the internet. Stick with terms like Special Needs and Sexual Education. :)


Monday, November 4, 2013

Puberty: Boundaries & Impulse Control; From Boy to Man...Seems the Greatest Challenges Lie Ahead

Baby things are
irresistible to Nick!
"After years of therapy and programs it comes down to this for Nick; boundaries and impulse control. These are the two most important things for him to master now, or everything else community goes off the table."


I was in Costco pushing my cart through check out when Nick walked away. I looked up to see where he was, and my eyes went right to a mom clutching her baby protectively to her chest. Her frightened eyes were fixed  on Nick saying "Who are you?! Don't touch my baby!" My first instinct was to protect my baby, and give that mom a piece of my mind and perform an on the spot sensitivity training. Topped off by letting her know what a small person she was for not understanding that Nick was my baby, a vulnerable harmless kid with a disability and not the threat she was envisioning!!

Then it hit me, I know that look. It's the protective mom look we all have that isn't' conscious, it is pure instinct. Every mom's had that look. In that instant my heart and mind shifted, and it only took seconds for me to look around and piece together what was "really" happening.  Her baby was dressed as one of Nicks favorite things, Winnie the Pooh. Nick no doubt had rushed up on her cart, excited to see Pooh, and the mom didn't see a special needs kid, she saw a grown man rushing up to her baby and she was truly frightened.  I related to the frightened look on mom's face. I'd seen it before on my own face so many times. I remember how protective of my babies I was (and still am) and there's nothing rational about it. We feel a threat and we react.

Seems I've mellowed or grown up a bit, because the feeling inside me to puff up my chest and go toe to toe with the mom subsided as quickly as it flared up. Gone was my desire to make her see my point of view, have her apologize for thinking my kid was a threat, and my need to make her out to be an ignorant person who was mean to a special boy evil eye wasn't totally gone, but it was brief.  I took a deep breath and saw her side. I understood. Her reaction was perfect. The challenge, the responsibility was mine, not hers.

The transformation of my son from being a boy, to being a man is so fast I can't keep up. I don't' know about anyone else, but no matter how prepared I try to be, I'm still being caught off guard. Nick may be my baby, but in the eyes of the world, standing at 5'7" 175 lbs he is a man. And today he was a man who just ran up on a baby, and that's frightening. As much as he's my child this is not the time to be naïve and being right is not going to be very useful. No matter my personal views I have to protect him by facing the facts; no matter how special, adorable, good, kindhearted he is, he is also a man who has not yet learned boundaries and impulse control and that can get him in terrible trouble.

After years of therapy and programs it comes down to this for Nick; boundaries and impulse control. I've been talking about it for a while as I've watched Nick's progress and growth. These are the two most important things for him to master now, or everything else community goes off the table. If I knew 10 years ago how long these skills took to teach, to generalize, I would have made it a priority sooner. But, then again we've always been focusing on what seemed to be the priority at the time.

So last night I prayed.....
God help us and protect him.
Keep Nick safe in a world where he doesn't understand the rules.
Help me to be the best mom I can be.
Help me to teach him all he needs to know.
Help others to have kind hearts.
Keep him safe, please.



Thursday, November 1, 2012

Choosing A Social Skills Program; Not as Easy as I Thought


When Nicky was three, I thought social skills would be the easiest of his many interventions. I thought the hardest and more important therapy was ABA, specifically DTT.  Social skills seemed so simple, easy breezy, anyone could do it.  I mean how hard it could be to get a child to play, follow your lead, and learn how to greet someone. Boy was I WRONG!!  Please understand, I am not minimizing ABA. ABA has been critical to Nick's development and both interventions are equally necessary for out kids. I a pointing out that I was simply wrong in thinking ABA was a more difficult intervention than social skills. In time I learned that in DTT Nicky was asked to repeat the same tasks over and over until he mastered it.  A good therapist followed a very specific program, executed only that program, measured results and did not do anything outside of the program trials. On the other hand, with social skills the therapist had to be constantly on the lookout for those unique opportunities in every situation to help the child build skills. A good social skill therapist is always looking for and creating teachable moments, vs following a specific program design. When you consider how different each of our kids are, you start to understand how much it work it takes to successfully address social skills.  Then there’s the reality that all social skills programs are not created equal. That said, no matter where your child is in the process, please read this great breakdown from Dr. Pam Wiley from LA Speech and Language. 

Social Skills Programs: Aren't they all the same?

The answer is “No. They are absolutely not the same.” It is not uncommon for a parent to enroll their child in a social skills program and then suddenly leave in disappointment. Most often it’s because parents thought that the program was something that it wasn’t. Common complaints are too structured, too much playing, unqualified staff even though the site administrator has impeccable credentials, or even staff members who demonstrate poor social skills. We’ve heard it all! The question then becomes how do you know which program is the right one for your child?
It’s really important for parents and professionals to be aware of the different types of programs and their specific focuses and approaches used to stimulate and promote positive social interactions. The four main types are language, behavior, sensory, and play and in this blog I will provide generalinformation on each of them.

Language Based
A language based program focuses primarily on the use of the verbal and nonverbal aspects of language. These programs offer structured and unstructured opportunities for your child to communicate effectively in a naturally occurring manner. The goal is to encourage children to use their words to communicate their feelings and thoughts, to understand the feelings and thoughts of others, and to learn the rules of social communication referred to as pragmatics which includes turn-taking, eye contact, topic maintenance, and other nonverbal dimensions of communication.
Like most programs, a language based program will also address challenging behaviors and sensory issues but these typically are secondary to the speech and language focus. A child best suited for this type of program is a child who has some language but does not use it consistently or appropriately, the child who wants to have friends but is unable to communicate effectively enough to connect with them, the child who is so “precocious” that s/he turns their peers off, or the child who is described as a social loner and disinterested in their peers. A speech and language based program is most effective for these types of children.
Language based social skills programs are led by Masters level or licensed/certified SLP’s who ideally should have training and experience providing services to children with ASD and other special needs.
Behavior Based
Another approach to social skills training is based on a behavior model. This model addresses social skills using a procedure called ABA or Applied Behavioral Analysis. These programs typically use a behavior modification approach to design and implement effective instruction. Programs may use floor time and other behavior based approaches to teach social skills. Behavior based programs ideally should be led by a behavior or cognitive psychologist who possesses training and experience working with children with ASD and other special needs. A behavior based approach is especially helpful for the child who has difficulty with joint attention and engagement.
Sensory Based
A sensory integration model is designed for children who may have abnormal responses to sensory stimulation. Therapy typically incorporates a variety of sensory movements, relaxation techniques and strategies to teach the child to self-regulate his/her sensory system.
Language is incorporated in this approach but sensory integration is the primary focus. This type of program is provided by a licensed and certified occupational therapist who has training and experience working with children with ASD and other special needs. A sensory based program is especially helpful to the child who fidgets excessively and engages in persistent spinning or movement as well as the child who is hyper or hypo sensitive to touch.
Play Based
The fourth type of social skills program is a played based program. The model is grounded in a philosophy which places an emphasis on the importance of play in childhood (Wolfberg, 2003). Children come together to play under the guidance of a qualified adult play facilitator. The program is effective.
Regardless of the type of program you select it’s important to consider how the skills are generalized to everyday situations. Lastly, probably the most important part of the equation is your role as the parent. It is critical that you are also involved in the training so that you are able to facilitate the carryover of the social skills objectives on a daily basis in the home, school, and the community. L.A. Speech offers social and pre social language skills programs on Tuesday, Wednesday (drama social skills) and Saturday. I encourage all of you to do your homework and find the best fit for you and your child.

Wednesday, June 6, 2012

AUTISM INSURANCE COVERAGE UPDATE...GREAT NEWS!


NEWS RELEASE


INSURANCE COMMISSIONER DAVE JONES APPLAUDS COURT DECISION ON COVERAGE UNDER CALIFORNIA MENTAL HEALTH PARITY ACT

Decision, in Which Department Submitted Amicus Brief, Reaffirms Health Plans Are Required to Cover

All Medically Necessary Treatment for Severe Mental Illnesses Insurance Commissioner Dave Jones announced today the Ninth Circuit Court of Appeals issued a decision reconfirming its previous holding in Harlick v. Blue Shield that the California Mental Health Parity Act requires health plans to cover all medically necessary treatment for severe mental illnesses, subject only to financial terms and conditions, such as deductibles and copays, applicable to coverage for physical illnesses. The court agreed with arguments Commissioner Jones made in an amicus curiae brief.

“This is a critically important decision that will help end unfair challenges so many families face when seeking autism treatment for their children," Commissioner Jones said. “I applaud the court’s reaffirmation of its prior decision, thus making treatment for autism and other mental illnesses more accessible to the families and children needing it. I also applaud Lisa Kantor and Elizabeth Green, the lead attorneys for Ms. Harlick, for their advocacy and determination in securing this outcome.”

Following issuance of a decision in August 2011, Blue Shield petitioned the panel of three judges to rehear the case or, alternatively, refer it to the full Ninth Circuit for rehearing. Yesterday’s decision makes some modifications to the court’s earlier analysis, but reaffirms its conclusion that Blue Shield must provide coverage.

The plaintiff in the case, Jeanene Harlick was a patient covered under a Blue Shield health plan. She was treated for anorexia at a residential care facility. Although anorexia is categorized as a severe mental illness under the California Mental Health Parity Act, Blue Shield denied coverage. It asserted, among other things, hat residential treatment is not a specifically listed benefit under the Mental Parity Act and therefore not covered. The court rejected Blue Shield’s argument.

The court’s decision declares two important principles protecting patients with mental illness, including autism. First, the Mental Health Parity Act creates a mandate that insurers provide coverage for all medically necessary treatment for severe mental illness, which, like anorexia, may be life threatening. Second, coverage may be limited only by the same financial terms and conditions, such as deductibles or copays, applicable to coverage for physical illnesses.

Please visit the Department of Insurance Web site at www.insurance.ca.gov. Non-media
inquiries should be directed to the Consumer Hotline at 800.927.HELP. Out-of-state callers,
please dial 213.897.8921.

Thanks to the tireless Lou Vismara for spreading the word!
Louis A. Vismara MD 
Policy Consultant to Senator Darrell Steinberg
Office of the President Pro Tempore
 
The State Capitol, Rm. 415

Sacramento, CA 95814 

Tuesday, February 28, 2012

ASD's Missing Link: Empathy. Nicky Made A Connection!


I'm in shock! Nicky unprompted, went into the kitchen and put chicken nuggets on the grill. When they were cooked he proceeded to get two plates. He divided the nuggets evenly on the grill, took half off and put them on a plate. Then he took the plate over to his longtime behaviorist "Miss Wendy" said "Thank You" and then went back and put the other nuggets on a plate for himself! This is HUGH. Nicky has NEVER made food for or served anyone other than himself unless we were right over his shoulder telling him what to do, armed with a reinforcer.


Equally miraculous was how he did this, with such ease and non chi lance as if this was just a part of his normal routine. Maybe in his mind, it always has been, he just wasn't able to express it yet.

Good Day!

PS: Another tribute to ABA and the pains of repeating! Never give up!!!

Tuesday, January 31, 2012

Changing Interventions, Part I: Transitioning Out of Intensive ABA

Nicky has been getting various ABA based interventions since he was diagnosed, which means our entire family has been getting ABA since he was diagnosed! Now his team is saying he's had these services too long. Combined with CA in budget crisis, well they have to move the kids forward. They are nudging us toward a new model "Life Skills" described as more flexible than our current program. Flexible??? What does that mean? More flexible, for who? Does it mean a lower grade services provided by staff with less skill? Does it mean we're on our own now? Does it mean this is his plateau?  Does it mean he will lose his structure and regress?
I Don't Want to Change!!!!!!!

I know we've been working toward this moment. We've changed his school program to be life skills based, we took him off the diploma track and my team says this will be good.

I'm nervous, anxious and feeling ton's of uncertainly. I'm not sure how much of my response is rational and how much is just my visceral reaction to change with some random fear thrown in. If it's fear, am I afraid for him or am I afraid for me? Maybe I'm not sure if I will be able to handle it. 

One things for sure, this journey has taught me I don't like change! They say our kids become prompt dependent, maybe I'm support dependent. Ugh!!!  I'll keep you posted.


Sunday, December 18, 2011

News Alert: Chasing Recovery, LA Times



DISCOVERING AUTISM - from the Los angeles times

Families cling to hope of autism 'recovery'

An autism treatment called applied behavior analysis, or ABA, has wide support and has grown into a profitable business. It has its limits, though, and there are gaps in the science.....

Saturday, September 10, 2011

Facing Facts: ASD Aggression and the Real World


Nick has two deficits which are his biggest barriers to living in the community. I don't mean living an independent life, I mean not living in an institution.  Aggression and a lack of safety awareness will determine how included he will be in society. He's going to be a grown man and once again, the things people tolerate while he's little will not be accepted from an adult. Especially a big black man kind of an adult! 

Our journey working on these is constant, non-stop. We take little tiny steps forward and steps backwards, the progress is slow and imperfect, but we have made progress.  There are other posts where I show the tools we've created, but this is the first video on the topic.
I learn so much every time I meet with ABA behaviorists, so I decided to tape a recent meeting with members of his behavioral team, where we talked about strategy. It's an unedited piece, in part because I don't know how to edit and I didn't want to risk taking something out that might be useful to someone :). 


Here's to helping our kids. 

Friday, September 2, 2011

"Behaviors" In Action, Nicky 1, Mom & Sister 1 - Part 3 Success, Video of a Dr. Visit


All my ABA training failed me in this moment (See hospital video 1 and 2) because Nicky just wasn't going to cooperate. Aften an hour of trying to connect his EEG, with the help of three nurses we failed when home. But it's not over here we are back again with supports in the form of Nicks big sister. Nicky was working us, first me and then his sister. But in the end, his sister and the nurses get it done, while Mom - who's comfort has become the ultimate reinforcer - stays out of the room.  It's funny to see how easy and fast the process goes once Nicky resigns himself. 



Thursday, September 1, 2011

"Behaviors" In Action, Nicky 1, Mom 0 - Part 2 - Home & Back Again

We head home and nobody's happy. Nicky's frustrated, then sad. We get home, review the video and head out again. Here's what happens when we leave the hospital and head back once he's watched the video (video number 1) and talked about what happened.  It's a good peek and melt down and recovery.

Wednesday, August 31, 2011

"Behaviors" In Action, Nicky 1, Mom 0 - Watch This Video of a Dr. Visit

What happens when you combine, an ASD kid, one mom, two nurses, an EEG and a "I'm not going for it" attitude? Watch and see :) 

Nick got a Flip video camera for his B-day. I decided to  record a doctor visit so Nicky and I could talk about it afterwards and I could show him what was happening. When I made this decision I had no idea what an incredible teaching opportunity we would be treated to!!! 

This is video number one, of three when we're at the  hospital to hook him up for his 24hr EEG. He’s been doing these since he was 4, one or two times a year.  Over the years we've done different things to get the job done; he's been lightly sedated, under full anesthesia,  strapped in a papoose board and most recently we just used the behavioral “First this” than “……” with a highly motivating reinforcer. We always let him watch video’s to keep him occupied while the monitors are applied to his head. 

Armed with his DVD player and movie of choice I expected  things to go smoothly, at least our version of smoothly. But this time Nicky just wasn't having it! This was our first trip where nothing worked.  In this video you get to watch me and the nurses try everything and in the end we leave, Mom 0, Nurses 0, Nicky 1, 

Next I will post: Video number 2 showing Nicky's surprise response to our departure and Video number 3 showing what happens when we return for a second try with our secret weapon...his sister!  Pretty good stuff. 

PS: This first video is the longest...I don't know how to edit yet.