Wednesday, June 20, 2007

Support Groups for Children with Autism, Aspergers, PDD

This is a great list of Support Groups for Children with Autism, Aspergers, PDD


This is an annotated list of support groups and listservs for parents of children wih Autism, Aspergers Syndrome or Pervasive Developmental Delay (PDD). These children's autism support groups are listed by these categories: Autism Parent Support Groups, Autism Therapy Groups, Autism Diet Groups, Topic Specific Autism Groups (e.g., girls, teens, resources.), and Autism Homeschooling. Read descriptions and join the autism children support group that best meets your needs.
Autism, Asperger Syndrome and/or PDD parent support groups and discussion listservs are excellent resources for parents of children with autism. In addition to these specific autism/Aspergers children groups, you may also wish to review related disability topic groups (such as sensory integration) in our Directory of Children's Disability Support Groups.

Autism/Aspergers/PDD Parent Support Lists

Asperger
An excellent listserv for discussions of all aspects of Asperger Syndrome (AS) and other forms of high-functioning autism, including Pervasive Developmental Disorder (PDD). Subscription requires owner approval. This is a well established, high volume autism support list.
To Join: Send email with the message, SUBSCRIBE ASPERGER to listserv@listserv.icors.org or join online.
Listowners: Head Listowner - Ellen Dietrick; Co-listowners - Karen Reznek, Sandy Sebree, Phil Schwarz , Dave Spicer, Tee Forshaw, Barry Conner
Autism
Tthe oldest ongoing discussion list for autism, provides general autism support.
To Join: Send email with the message subscribe [password] [digest|nodigest] [your email address] to autism-request@lists.apana.org [Commands in brackets are optional.]
or join online.
Listowner: Carolyn Baird. Panel Representatives: Ray Kopp, Linda Carlton, Kevin Kramer
Autinet
An unmoderated parent support group and news service for Autism and Asperger's Syndrome, running since 1996.
To Join: Send the message with "SUBS" in the subject line to autinet@autinet.org. In your message to listowner Peter Wise include a little about yourself, your interest in Autism and Asperger's Syndrome, and your COUNTRY of residence (for statistical reasons).
Aspergers Support
Mailing list for parents of children with Asperger's Syndrome or High Functioning Autism.
To Join: Send a blank email to AspergersSupport-subscribe@yahoogroups.com or join online.
PDD BP KidS (Pervasive Development Disorder Bipolar Kids)
This group is for parents and primary caregivers of children diagnosed with PDD (Pervasive Developmental Disorder), Autistic Spectrum Disorder (Autism, Asperger's Syndrome, PDD-NOS, Rhett's Syndrome, Childhood Disintigrative Disorder), and BP (Bipolar Disorder).
To Join: Send a blank email to PDD-BPkids-subscribe@yahoogroups.com or join online.
Autism Aspergers
A high quality, high volume support list where parents share stories, treatments, therapies, ideas, advice and support about their children with moderate to high functioning autism or Aspergers syndrome.
To Join: Send a blank email to Autism-Aspergers-subscribe@yahoogroups.com or join online.
Parenting Autism
An excellent, high volume parent support group to share the day-to-day experience of being a parent of an autistic child.
To Join: Send a blank email to Parenting_autism-subscribe@yahoogroups.com or join online.
Children with Autism
High volume parent support list for autism.
To Join: Send a blank email to children_with_autism-subscribe@yahoogroups.com or subscribe online.

Autism/Aspergers Topic Specific Groups

Autism Behavior Problems
Helpful discussion, aid and support in dealing with these behaviors present in the autistic child. Support on topics for all ranges of behaviors...self stimulating, self injurious, aggressive, inappropriate etc and different ways of addressing these problems.
To Join: Send a blank email to AutismBehaviorProblems-subscribe@yahoogroups.com or join online.
Autism in Girls
Restricted membership! This is a high quality list for parents and professionals who wish to exchange information regarding treatment of autism in girls, how autism effect females in the family, and any other issues dealing with autism and females and/or the comparison of males and females with autism.
To Join: Send a blank email to Autism_in_Girls-subscribe@yahoogroups.com or join online.
Autism Adolescence
Autism Spectrum Disorders and adolescence support for parents who have pre-teen or teenaged children. Please free to share your stories, advice, woes, rants, tears, and especially laughter here with us.
THIS IS A HIGH VOLUME LIST.. http://www.geocities.com/alleycatjo/Autism.html
Awaiting review.
Autism Awareness Action
A moderately high volume group to help parents find autism related resources and support, not state specific but is associated with a Texas autism group.
To Join: Send a blank email to autism-awareness-action-subscribe@yahoogroups.com or join online.

Autism and Aspergers Therapy Groups

Floortimers Floor Timers
A small group, but an important topic. Parents, caregivers, therapists, educators and related professionals who work with children using using a floortime approach share ideas and provide support for one another.
To Join: Send a blank email to floortimers-subscribe@yahoogroups.com or join online.
HDO Therapy for Autism
Hyperbaric Oxygen Therapy (HBOT), or more accurately, High Dosage Oxygen Therapy (HDOT} is fast becoming one of the more successful therapies for children with Autism. Autism is a neurological injury whether caused by toxicity, birth injury or unknown. Some amazing results are being obtained, especially with young children.
To Join: Send a blank email to HDOTherapyforAutism-subscribe@yahoogroups.com or join online.
Verbal Behavior
A high volume moderated forum for teaching verbal behavior (VB) within a program of applied behavior analysis (ABA). Discussions include difficulties in the development of communication seen in most individuals with autism and other related disabilities, with an emphasis on functional language and motivational variables using ABA techniques.
To Join: Send a blank email to VerbalBehavior-subscribe@yahoogroups.com or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com
Autism ABA
The Autism and ABA list is an open, unmoderated forum for discussing anything related to autism. Much of our discussion centers around Applied Behavior Analysis (ABA), including areas of ABA such as teaching Verbal Behavior (VB) and Natural Environment Training (NET). We're a quiet list, but we have a healthy mix of parents, professionals, and others involved with autism in some way.
To Join: Send a blank email to autismaba-subscribe@yahoogroups.com or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com
DTT-NET (Autism: AVB: ABA: Verbal Behavior)
A moderated list for parents and professionals running home (and school) programs to discuss concerns and share their knowledge of Applied Verbal Behavior (AVB), a specialty within the field of Applied Behavior Analysis (ABA).
To Join: Send a blank email to DTT-NET-subscribe@yahoogroups.com or join online.
Listowners: Jenn Godwin and Steph Hulshof

Autism Diet Support Groups

ABMD (Autism BioMedical Discussion)
High volume group for discussions by parents and professionals of research and biomedical interventions as they apply to the investigation and treatment of autistic spectrum disorders.
To Join: Send a blank email to abmd-subscribe@yahoogroups.com or join online.
ANDI_ADI (Autism Network for Dietary Intervention)
This is an ADVANCED autism-diet discussion group moderated by ANDI, the Autism Network for Dietary Intervention. The purpose of this list is to provide a forum for discussion regarding advanced dietary treatment options such as the Specific Carbohydrate Diet (SCD), the Body Ecology Diet (BED), grain-free, sugar-free, low oxalates, supplementation, and other dietary interventions for children with autism spectrum disorders.
To Join: Send a blank email to ANDI-ADI-subscribe@yahoogroups.com or join online.
GF CF Kids (Gluten-Free Casein-Free Kids)
This high volume, unmoderated list provides discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets.
To Join: Send a blank email to GFCFKids-subscribe@yahoogroups.com or join online.
Enzymes and Autism
The Enzymes and Autism forum is a high volume list for the discussion of digestive enzymes (and many other types of supplements) and thier effect on the autistic spectrum/PDD, attention deficit, sensory integration, digestion/malabsorption, and food sensitivities/allergies.
To Join: Send a blank email to EnzymesandAutism-subscribe@yahoogroups.com or join online.
Chelating Kids 2
A restricted discussion list of parents with children who have autism/ mercury poisoning and are using chelation.
To Join: Send a blank email to chelatingkids2-subscribe@yahoogroups.com or join online.
Listowner:
Gluten-Free Casein-Free Recipes
High volume group to share recipes for cooking a gluten-free, casein-free diet for chidren.
To Join: Send a blank email to GFCFrecipes-subscribe@yahoogroups.com or join online.

Autism and Aspergers Homeschool Groups

Home Schooling Aspies
Support list for Christian moms who homeschool (or are seriously considering homeschooling) their children who have been diagnosed with Asperger's Syndrome (or suspect their child has Asperger's Syndrome). All are welcome to join, but there will be a Christian focus to many of the posts. We are here to encourage, support, and pray for one another as we do our best to teach our Aspies at home.
To Join: Send a blank email to homeschoolingaspies-subscribe@yahoogroups.com or join online.
Aut-2B-Home (Autism To Be Homeschooled)
Listserv for homeschooling children with autism.
To Join: Send email with the message, SUBSCRIBE AUT-2B-HOME to LISTSERV@LISTSERV.ICORS.ORG or join online.


2 comments:

  1. Autism therapy helps in getting a person to the track from where he/she is capable of getting merged with the socity..

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