Saturday, May 19, 2012

APA forced to Re-Open Public Comment on DSM5

This just in....

In response to the intense criticism surrounding the Diagnostic and Statistical Manual 5 (DSM5), the American Psyciatric Association (APA) has re-opened public comment on the proposed changes. Please log in to the APA website at and please provide comments on why the proposed changes to the definition of autism are poorly considered notions that pose a great threat to people with autism, yet provide no tangible benefits.

You can comment at and please copy and paste your comments and send them in an email to Autism Action Network at

Multiple studies have shown that anywhere from 55% to 19% (the APA's own study) of all people with a current diagnosis will lose their autism diagnosis. For many people the loss of the diagnosis will also mean loss of educational placements, possible health insurance coverage, Medicaid waivers, early intervention and other services. A new catch-all diagnosis called "social communication disorder" has been invented as a new label to apply to those who lose their autism diagnosis.

If changed, the new diagnostic critieria will also allow those who want to deny the epidemic the leeway to discount the last 20 years of autism epidemiology. They will claim that due to the changes in the DSM5 we are comparing apples and oranges. 

We can fully expect school districts, service providers and insurance comapnies to require re-evaluation with the proposed new criteria, we have received reports that this is already happening. The cost to re-evaluate 100,000's of people with autism will be extremely expenisve to families, and the ovrerall cost of adopting the new DSM5 will require the retraining of thousands of professionals, also at great expense.
And to top if off, the APA has not been able to identify a single benefit to people with autism that will result from this pointless, dangerous and expensive venture. Please comment at and please copy paste your comments and email them to the Autism Action Network at We will be posting the most interesting comments on our website.

Please share this email with friends and family and please post to Facebook and other social networks. And again please comment at


  1. Autism is a world wide epidemic and is an equal opportunity destroyer; however, with prayer, the power of belief, persistence, and remembering the African proverb: "It takes a village to raise to child"; therefore, a network of family, friends, researching social programs and services, will provide the feeling that you and your for family(ies)is not alone in the autistic journey of your child or children. Autism is a lifelong disability and reality and for the DSM5 manual to be re-vamped, re-written, and re-evaluated is a huge step backward for future generations of autistics to come.

  2. In California, Regional Centers are wonderful and a blessing for families of the developmental disabled; from birth to death services are provided. Even though the State of California is in a gigantic economic deficit, thank God the agency exists, because if my son and I resided in another state of America, the cost of round-trip transportation to his supportive workshop, respite, and a personal care attendant to acclimate him at a community college perhaps would be out-of-pocket, and/or a waiting list may be impending for services for an autistic 25 year-old who desires to work and continue his education. The "new" DSM5 will add fuel to a fire that is already ablazed; imagine the continued protests. I wonder,if the committee(s) of the re-vamping, re-evaluating DSM5, do they have an autistic loved one or child?

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