Today I feel so sad and discouraged. Lately every door I fight to open for Nick gets closed. Seems the answer is the same wherever I go. Church camp Summer Retreat, "NO",
Vocational School, "NO", Summer Camp...just kicked out. He's just not, well "enough". Not independent enough, not behaved enough, not spiritual enough.
Nick is not high functioning when it comes to socialization, and he's not low functioning. When frustrated he might go along, or he might tantrum. He might go months without a single community outburst, but if he has one, it's back to the drawing board. It's like all progress has been erased in the eyes of the world. It's just not enough.
He's an in-between, and there is not place for "in-betweens". No where is there a bridge that takes him from here to there. But I am not willing to settle.
I am a single mom raising a son with autism. 21 years ago, I read "Autism: a permanent developmental disability requiring lifelong care for which there is no known cause or cure". In that moment my world shifted. Today more than 3.5 million readers have shared in our journey through this blog as I have detailed our 21-year journey of grief, joy, disappointments, successes, lessons, strategies, personal challenges, frustrations, fears all as they unfolded- day by day.
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ReplyDeleteThis is not acceptable, I myself am trying to make a change in this for teens n his sight..Wish me luck its hard to get folks on board.
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