Showing posts with label school age. Show all posts
Showing posts with label school age. Show all posts

Tuesday, August 2, 2016

10 Things about Special Day Class (SDC) Schools Don't Want You To Ask

The first special day class I visited for Nick confirmed every negative stereotype I had in my brain convincing me that Nick should ever be placed in one.

Over the years I've come to question if any child with autism could reach their potential in an SDC setting, yet I know there are little or no alternatives for many of our kids. What I know now is, it is possible when viewed as something we shop for, vs something we just accept or take for granted.


The big idea here is too many SDC's and the teachers who run them are still operating from the perspective that our children will never developmentally grow beyond elementary school.  As a result, they set the bar low and our children suffer, never getting the opportunity to reach their full potential.
Sadly many SDC teachers are still treating students, even in high school, like babies, their "special children" unaware their perceived limitations of each student are part of the problem. For years I thought this would change, but when Nick came home from summer school last week with a "Certificate of Excellence" in an owl cut out aimed at K - 2, my first reaction was "Really....why the heck are you treating my 18-year-old like a child?"  Another reminder change is slow, and we have to teach teachers too!
Ten things you need to consider when placing your child in an SDC? 

1. Does the room feel age appropriate? If the classroom, is not in elementary school, but it looks like one the setting screams, we think your child will always be a baby! 

2. Do conversations between students, teachers, and aids sound like they are talking with a kindergartner?  Individuals with developmental disabilities should be spoken to in a normal fashion, and not talked down to, no matter their age. 

3. Is the class engaged in age-appropriate activities?  I don't mean activities should not be modified for each student. What I mean is does your 17-year-old come home from a field trip with a paper hat on his head?! 

4. Do class activities reinforce negative stereotypes of special needs children? Are they asked to line up and walk single file to the cafeteria in middle school...when the other students are not?  If you're not sure, just channel your inner 10 to 18 year old, and consider the things SDC students did that you laughed at. 

5. When you go in the room, does the teacher sound like a teacher or a parent? Teachers should always sound like instructors, leaders, a person of authority. Teachers who coddle our children often fail to see their potential and instill confidence to achieve more. Pity only stunts their growth. 

6. Are the SDC students being isolated from the typical students during lunch, recess, and other nonacademic activities? When SDC students are not included as much as possible in the general education population during lunch, recess, and other nonacademic activities everyone loses. The general population is denied the opportunity to learn about diverse populations, which will be critical in a world where 1 in every 54 individuals has ASD. In turn, our students are not given the opportunity to mirror and learn from the general ed population.

7. Are you welcome to visit the class at any time? Be skeptical of any classroom where parents are not welcome. No matter what anyone tells you about a classroom the only way to really know how it is run is to see it in action. Yes, you have to follow the school rules, which vary from campus to campus, but you are legally entitled to observe during school hours. 

8. Does the SDC have a process for generalizing the skills learned in the classroom? ASD students memorize information, which is often not retained over time when they are not taught to apply the information in their day to day lives. No matter how many academics are taught, if the SDC cannot demonstrate a plan for each student to generalize skills into the world outside of school, your child may graduate school a social and functional illiterate filled with information that cannot be used to achieve or further their independence. 

9. Does the SDC teacher have experience working with the unique needs of children with autism?  Too many educators are still unaware of the unique and often complex needs of children with autism.  Don't let the small classroom fool you into believing each child is being well serviced. Children with autism, down syndrome, epilepsy, and an array of other disabilities all have unique needs and learning abilities and styles. there is no such thing as a one size fits all when it comes to teaching. 

10. Is your child showing measurable growth in his SDC?  The school expectations for our typical children are pretty universal, and it's easy to let society, our school system, and educators pull our children along the milestones of an "educational" path. On the other hand, due to their individual needs, there is not a universal standard of milestones for special needs chidren. As a result, it's far more difficult to measure our children's progress and map where they are in the process. A great teacher has a plan and understands the goal is independence.  A qualified teacher will help you understand your child's academic/school goals and can tell you how they apply to their eventual independence.

If any of these things are happening in your child's SDC, don't give up, talk. I've found that most teachers want to do a good job, and many have just never been educated about our children. And if you find the teacher won't listen, or can't hear you, go to the next person in charge and express your desire  is not to be disruptive, you just want to help to create a better setting for you child and the other students.  





Tuesday, April 28, 2015

Is Your IEP Working? Mom Looking for Solutions in High School

The Proverbial Snowball Before Aging Out...Education and Support after Middle School.
 
Time is going by and here we are 15 years later, fighting the same battle with a few key differences; time is not on our side, gone is the idea that Nick might "snap out of it" with early intervention, his potential is no longer a total mystery and the clock is ticking, with us getting closer and closer to the day when there's nothing for him to do. Closer and closer to the day - that if I don't do all I can do - there's nothing but regret left for me, and loss of opportunity for him. I am the only one who's journey to get the best services for her kiddo, looks more like Mom on a treadmill than Mom on a journey!!!  I am the only one out there who thought after all the work we've done to make things better for our kids, we would be done battling day in and day out to get appropriate services by the time they were 17???   Was I the only one who thought maybe, just maybe in the past 15 years since the ASD epidemic began, the education system would have adapted, improved and prepared itself to accommodate the children that would become adults?  

I am sad to be working as hard now to find options for Nick, as I did when he was first diagnosed! I wasn't truly prepared for that. I held out hope that when he got to be this age, things would be better. Intellectually I knew it was possible the system would not be ready. I even talked about it, but emotionally I was in denial, I just wasn't prepared to be here again. I thought I’d matured, gotten calmer. Nope I’m still the same claw carrying mom I was when this journey began. I'm angry, and I'm sad this is where we are. I wasn't truly prepared for the degree of limited resources; I wasn't prepared for the small amount of qualified behaviorist/therapist/programs available to work with young adults vs kiddos. 

Right now I don't know the answer, but I do know we have to find one.  


I could use some inspiration right now? Any ideas? 


Thursday, April 23, 2015

NBC's Special on Autism and Aging Out; is There Hope?


NBC’s Dateline on Autism; Aging Out: What Next?

    NBC's Dateline aired "On The Brink," an hour-long special which focused on autism and the issue of aging out of school-based services.  It was a show where I didn't have to be psychic to know what was coming next; a crisis for our children, families and communities. Our communities have not sufficently addressed the issues facing families for our children for life after highschool, ongoing education, to access to vocational programs, or housing. Individuals with autism are not being given consistent access to what they need to contribute to society, work and share their gifts. Many young adults on the spectrum can work, they can pay tax's they can financially contribute to our society, and we need programs to make this happen. 

    In the end, the program shared what the families had found for their children, and sadly it was very clear that ASD is still the survival of the fittest illness, with families who have one or a combination of resources; money, time, education, determination and support finding something, after long struggles. Often the something beign far from whey they wanted, but more than what was typically available.  
    I wonder when it will change. Probably only when we change it. 
    Lastly, we began life skills at home when Nick was 11 and I'm so thankful we did. Today he can do chores, he has learned to be consistent, follow direction and mostly engage in un-desired tasks. I did'nt know how important this would be when we started, but I know now....thank goodness we started at home because his school can't offer what he needs. Donna



More on Transitioning/Vocational Skills;
http://autismdaybyday.blogspot.com/2011/05/transitions-please-bring-on-chairs.html
http://autismdaybyday.blogspot.com/2011/06/getting-it-changes-transitions-and-our.html
http://autismdaybyday.blogspot.com/2014/03/employment-may-lead-to-improvement-in.html
http://autismdaybyday.blogspot.com/2013/09/whats-working-celebrating-vocational.html

https://youtu.be/X1zgCxCntDE
The transition to adulthood can be an overwhelming experience for any family, but it is often especially difficult for families in the autism community. Many aren't sure of what is to come on the road that lies ahead, and as a result, the journey can seem daunting. 
The documentary Sounding the Alarm tells the story of Kent Martling, a 21-year-old with high-functioning autism who attends Riverview Boarding School in East Sandwich, Mass. At the time of the filming, Kent had only a few days left before his 22nd birthday, when he would no longer be eligible for services through the school system.
“It’s just a sad thing,” says Maureen Brenner, Executive Director at Riverview. “We’re proud of everything Kent has accomplished to date, but boy, would we love to have another few months to help him just master some of these skill areas he’s been working on.”
Brenner notes that while individuals with greater support needs will often receive services through the state after turning 22, “there are people at a higher functioning level like Kent that we describe as ‘falling through the cracks’ and may not have eligibility for services that could make all the difference in their lives,” she said. “If we don’t prepare as a society for that, they aren’t going to be the contributors to this country that they could be.”
Watch Kent’s story below:
Watch the full Sounding the Alarm documentary here.
Autism Speaks has a multitude of resources to help families of individuals with autism prepare for the transition to adulthood:
  • The Transition Tool Kit was designed to serve as a guide to assist families of individuals between the ages of 14 and 22  on the journey from adolescence to adulthood. The kit contains information on topics like self-advocacy, community living, postsecondary education, legal matters and more.
  • The Community-based Skills Assessment, developed through a contract with Virginia Commonwealth University’s Rehabilitation Research and Training Center, is a tool to help parents and professionals assess the current skill levels and abilities of individuals with autism beginning at age 12 and continuing into adulthood in order to develop a comprehensive personalized transition plan.
  • The Postsecondary Educational Opportunities Guide helps young adults and their families explore the various opportunities and learning environments available after leaving high school. This tool kit offers the best possible resources on the topic of postsecondary education to help families explore all of the various options available.
  • The Housing and Residential Supports Tool Kit was developed to assist individuals and families as they identify and secure appropriate residential supports and services by providing an overview of housing options and tools to help access these services.
  • The Employment Tool Kit provides young adults and adults with autism with tips and tools to help them research, find and keep employment in the current competitive labor market.
  • Autism Speaks is committed to increasing services and expanding opportunities for the rapidly growing population of young adults and adults with autism. To that end, we have launched a Housing and Community Living initiative to increase access to housing and residential services of adults with autism by reducing HCBS waiver wait lists and improving housing vouchers, and to expand the capacity of service providers who care for them. You can read more about our HCL initiative HERE and sign up to join this initiativeHERE.