Tuesday, March 20, 2012

Mom's of Autistic Children Work Less, Earn Less

Yes, this was in the news and I couldn't bring myself to call it "NEWS". 

Are there any Mom's out there who didn't know this? Is there anyone out there who doesn't know this? 

News for autism report march 19 2012

MD News
  1. Moms of autistic children work less, earn less

    Reuters‎ - 1 day ago
    "The needs of children with autism really straddle a number of service systems and there is a tremendous ... SOURCE: bit.ly/cxXOG Pediatrics,March 192012.
  1. About - News & Issues‎ - by Vincent Iannelli‎ - 1 day ago
    An autistic child peers from between curtains at the Consulting Centre for Autism in Amman, March 30, 2010, one of the few places in the country that helps children with the condition. REUTERS/Ali Jarekji
    An autistic child peers from between curtains at the Consulting Centre for Autism in Amman, March 30, 2010, one of the few places in the country that helps children with the condition.
    Credit: Reuters/Ali Jarekji
    NEW YORK | Mon Mar 19, 2012 11:02am EDT
    (Reuters Health) - U.S. families with autistic children earn nearly $18,000 less than parents of normally developing kids, according to a new report.
    The gap is mainly due to mothers not having a job or working fewer hours, researchers found.
    "The needs of children with autism really straddle a number of service systems and there is a tremendous amount of finger pointing in terms of who's going to pay," said David Mandell, associate director of the Center for Autism Research at The Children's Hospital of Philadelphia.
    "Mothers are leaving the workforce to cobble this care together for their kids," he added.
    Autism spectrum disorders, which range from mild Asperger's syndrome to severe mental retardation and social disability, affect about one in 110 children in the U.S., according to the Centers for Disease Control and Prevention.
    As more and more kids are diagnosed with the disorders, the nation is grappling with how to pay for the extra care these children need, which may cost as much as $3.2 million over a lifetime.
    Mandell said that until now, the impact on individual families in terms of employment and earningshad not been clear.
    For the new work, Mandell's group used data from national household surveys done yearly between 2002 and 2008, including 261 children with autism and more than 64,000 without health problems.
    After accounting for factors such as parents' age, race, education and health, fathers of kids with autism were just as likely to be employed as fathers of typically developing children. The same was true for how much fathers worked and earned.
    For mothers, however, there was a marked difference. Compared with mothers of kids without disabilities, those who had autistic children were six percent less likely to be employed, worked seven hours less per week and had less than half the annual income.
    All told, households with autistic children earned $17,763 less a year.
    The researchers couldn't say for sure that the gap is caused by having a child with autism. But Mandell said today's system means families have to shuttle their kids between several different providers.
    "I think it's a case of the mother becoming the case manager and the advocate for the child," he told Reuters Health. "If these kids were appropriately cared for it wouldn't be such a burden for the family."
    Guillermo Montes, a researcher at St. John Fisher College in Rochester, New York, said the new study shows families with children with autism make different financial decisions than others.
    "By putting their kids first, these decisions result in lower and more unstable family income," Montes, who was not involved in the new work, told Reuters Health by email.
    "State legislatures, employers and the federal government have to engage these families in a conversation about how to best assist them," he added. "Any assistance must preserve work flexibility and the wide variety of work and care arrangements which are key to achieve a work-family balance that works for kids with autism, their siblings and their parents."
    SOURCE: bit.ly/cxXOG Pediatrics, March 19, 2012.


  1. I don't imagine that it would be easy for many of us to keep a steady job, being that schools often assume we can drop everything at a moment's notice to deal with an out of control child. Every day that my son is in school, I feel like I'm on-call. I have to carry my phone with me everywhere, just in case. That can be more stressful than any paying job!

  2. I had to leave my salary paying job and stay home so someone could be there to deal with the therapy schedules, etc... So now I do in-home preschool with childcare hours because we need the income and that was one of the only options I had that allowed me to be here for my son....

  3. It's going to take a lifetime of studies for experts to document our experiences...we live in a realm beyond comprehension for so many.