Saturday, January 26, 2013

The Grief That Keeps On Giving: Growing Up



The contrast between doctor offices for grown ups and pediatric offices is a little microcosm of the world, offering an unwelcome peek into our world to come. 


This is just one more reminder that Nick is growing up. He looks like a giant in the pediatricians office! 

I know there's nothing I can do about it, but I don’t want to leave the cushioned kinder gentler world of pediatric care, with its happy receptionists, patient nurses, toys, stickers, cushy comfy sofas and inviting bright colors, for the "Adult World" of rushed doctors, hard chairs, sedate colors and magazines on illness and aging.   I don’t want to leave the world that radiates hope and possibilities for the future, in exchange for a world whose only blueprint for the future of adults with autism is depressing and certainly not hopeful; just maintenance and acceptance for what is, and not dreams of what might be.

41 comments:

  1. No one knows the pain of each transition better than those who've already experienced it. My heart hurts remembering each stage you describe in your wonderfully articulated journal. The one saving grace is that we all eventually get to a place where we stop lamenting what could have been and begin to celebrate what is. Bless you dear Donna as you share your unabashed jouney of survival. Nicky is lucky indeed to have you for his mother.

    ReplyDelete
  2. This comment has been removed by the author.

    ReplyDelete
    Replies
    1. The last time I researched the employment outlook for adults with developmental disabilities, the figures were not good. About 90% of all adults with developmental disabilities are unemployed. This is simply a waste of lives, as well as a burden to the entire socio-economic system. There is a man from Norway, Thorkil Sonne, who is creating jobs for those with high-functioning autism. He will be setting up his business model, Specialisterne, soon on the east coast of the U.S. His workers, all with ASD, test computer programs, cell phone and table apps, etc. As the parent of a son with autism, Sonne is one bright light in an otherwise dismal landscape. But surely among all of us other parents, we can put our heads together and figure something out. But imagine that--jobs being imported to the United States! And all because of our ASD population. Wild.

      Delete
    2. There is actually a company starting up in the Silicon Valley called Semperical soing the same thing as this man in Norway. Check it out: http://www.semperical.com/ Maybe this will catch on across the nation!

      Delete
  3. Thank you Keyabewina and Prudence,
    Your comments reflect a perfect balance of what is, the good, the bad, the sad, and what could be. I continue to be inspired by each of you.
    Donna

    ReplyDelete
  4. I am actually delighted to glance at this blog posts which
    contains plenty of valuable facts, thanks for providing these data.


    my webpage: Website

    ReplyDelete
  5. Pretty! This has been an incredibly wonderful post. Many thanks for
    providing these details.

    Here is my web site airg gamers chat - chatclimax.com

    ReplyDelete
  6. Wonderful work! That is the kind of info that are meant to be shared across the internet.
    Shame on the seek engines for no longer positioning this submit upper!
    Come on over and visit my site . Thank you =)

    Here is my web site visit website

    ReplyDelete
  7. Piece of writing writing is also a fun, if you be familiar with then you
    can write or else it is complex to write.

    Feel free to surf to my web-site http://sororityorgy.org

    ReplyDelete
  8. Nicе blog here! Also youг sitе loaԁs up fast!
    What hоst are you usіng? Cаn
    I gеt your affilіate link tо youг host?

    I wish mу website loaded uρ аs fast as yours lоl

    My hοmepage; http://www.classiccars4sale.net/member/19113

    ReplyDelete
  9. Today, while I was at work, my cousin stole my
    iphone and tested to see if it can survive a twenty five foot drop, just so she can be
    a youtube sensation. My iPad is now broken and she has 83
    views. I know this is completely off topic but I
    had to share it with someone!

    Feel free to surf to my site :: click Here

    ReplyDelete
  10. You've made some decent points there. I looked on the internet for additional information about the issue and found most individuals will go along with your views on this site.

    Look at my web-site - with Retro Porn

    ReplyDelete
  11. I read this piece of writing completely about the resemblance of latest
    and earlier technologies, it's remarkable article.

    Also visit my web-site; http://petitegangbangs.com

    ReplyDelete
  12. It's difficult to find knowledgeable people in this particular topic, but you sound like you know what you're talking about!

    Thanks

    Also visit my web blog - visit

    ReplyDelete
  13. Currently it seems like Wordpress is the top blogging
    platform out there right now. (from what I've read) Is that what you are using on your blog?

    Feel free to surf to my webpage http://vintagewifemovies.com

    ReplyDelete
  14. whoah this blog is great i love reading your articles.
    Stay up the great work! You realize, lots of individuals are hunting around for this information,
    you can help them greatly.

    My web-site: http://extremefucking.org

    ReplyDelete
  15. Wow that was strange. I just wrote an very long comment but after I clicked submit my comment didn't appear. Grrrr... well I'm not writing all that over again.
    Anyhow, just wanted to say superb blog!

    Here is my web page; in elisa kissed By the sun

    ReplyDelete
  16. I'm not usually one with regard to writing reviews but thought I would pen my (very) limited experience with ecigs.

    Take a look at my web site: green smoke promo code

    ReplyDelete
  17. Heya are using Wordpress for your site platform? I'm new to the blog world but I'm trying to
    get started and create my own. Do you need any coding knowledge to
    make your own blog? Any help would be really appreciated!


    Feel free to surf to my blog; teen brunette maid gets senior cock inside her tight pussy

    ReplyDelete
  18. Hi, I believe your site could possibly be having
    browser compatibility issues. When I take a look at your web site in Safari, it looks fine however, when opening
    in IE, it has some overlapping issues. I merely wanted to provide you with a quick heads up!
    Other than that, great blog!

    Feel free to surf to my web page: Read Full Report

    ReplyDelete
  19. Great article! That is the kind of information that are supposed to
    be shared around the internet. Disgrace on Google for no
    longer positioning this submit higher! Come on over and visit my website .
    Thank you =)

    Also visit my homepage; 2013 at 1:04 pm

    ReplyDelete
  20. My family always say that I am killing my time here at web,
    except I know I am getting experience every day by reading thes pleasant posts.


    Also visit my web page; Uskawa.org - 천연세제 만들기 동영상-Ktn

    ReplyDelete
  21. Hello to every one, the contents existing at this web page are genuinely amazing for people knowledge, well, keep up the nice work
    fellows.

    Feel free to surf to my blog post More Nubiles Nikki

    ReplyDelete
  22. The signals connect with concentrated nerve places, which in turn spread the signal to the complete abdominal location.



    My web site :: http://www.progamers4hire.com/

    ReplyDelete
  23. Heya this is somewhat of off topic but I was wondering if blogs use WYSIWYG editors or if you have to manually
    code with HTML. I'm starting a blog soon but have no coding experience so I wanted to get guidance from someone with experience. Any help would be enormously appreciated!

    My homepage; http://pornharvest.com/index.php?m=2137097

    ReplyDelete
  24. My relatives every time say that I am wasting my time here at net, except I know I am getting know-how every
    day by reading such pleasant articles.

    my blog post - Breaking News

    ReplyDelete
  25. You rеally make it sееm so easy with уour ρгeѕеntаtion but I find thіs mаtter to be actually something that I think I ωοulԁ
    never undеrѕtand. Ӏt ѕеems tοo сomρlicateԁ аnd
    еxtгemely broaԁ for mе. I am lookіng fοгwaгd
    fοr your next post, I ωill try to get the hang
    оf it!

    Check оut mу blog ... V2 Cigs Review

    ReplyDelete
  26. I am truly glad to glance at this web site posts which carries plenty of helpful facts,
    thanks for providing such statistics.

    Stop by my site - Recent comments

    ReplyDelete
  27. My spouse and I absolutely love your blog and find almost all of your
    post's to be precisely what I'm looking for. Do you offer guest writers to write
    content available for you? I wouldn't mind producing a post or elaborating on a number of the subjects you write related to here. Again, awesome weblog!

    My web-site :: nasty blonde in action

    ReplyDelete
  28. I quite like reading through an article that can make people
    think. Also, thank you for permitting me to comment!



    my web page: http://pornharvest.com/index.php?m=2339708

    ReplyDelete
  29. Hi, i think that i saw you visited my web site so i came to
    “return the favor”.I am trying to find things to enhance my website!
    I suppose its ok to use some of your ideas!!

    My blog ... Visit website

    ReplyDelete
  30. I don't know whether it's just me or if everyone else experiencing problems
    with your site. It appears as though some of the written text in your posts are running
    off the screen. Can somebody else please comment and let me know if this is
    happening to them too? This may be a problem with my browser
    because I've had this happen previously. Many thanks

    Stop by my web blog :: cute teen brooke sits outside with a fuckin houseplant and gets nice and

    ReplyDelete
  31. Hello there! This is my 1st comment here so I just wanted to give a quick shout out and
    say I truly enjoy reading your blog posts. Can you recommend any other blogs/websites/forums that cover the same topics?
    Thank you so much!

    my homepage - Recommended You Read

    ReplyDelete
  32. I know this site gives quality depending content and other material, is there any other web site which presents these kinds of information in quality?


    my blog post :: http://pornharvest.com/index.php?q=nubiles+ninita&f=a&p=s

    ReplyDelete
  33. Hello mates, its impressive post on the topic of educationand fully defined, keep it up all the time.


    Look at my website: visit

    ReplyDelete
  34. I really like your blog.. very nice colors & theme.
    Did you create this website yourself or did you hire
    someone to do it for you? Plz respond as I'm looking to construct my own blog and would like to know where u got this from. kudos

    my blog: visit

    ReplyDelete
  35. Hey I know this is off topic but I was wondering if you knew of
    any widgets I could add to my blog that automatically tweet my
    newest twitter updates. I've been looking for a plug-in like this for quite some time and was hoping maybe you would have some experience with something like this. Please let me know if you run into anything. I truly enjoy reading your blog and I look forward to your new updates.

    my homepage danita sensual soak

    ReplyDelete
  36. Woah! I'm really enjoying the template/theme of this blog. It's simple,
    yet effective. A lot of times it's very hard to get that "perfect balance" between superb usability and appearance. I must say you've done a
    great job with this. In addition, the blog loads extremely fast
    for me on Firefox. Outstanding Blog!

    Feel free to surf to my page; sexy banana show

    ReplyDelete
  37. Wow, that's what I was exploring for, what a material! present here at this webpage, thanks admin of this site.

    Also visit my blog; http://pornharvest.com/index.php?m=2339517

    ReplyDelete
  38. Attractive section of content. I simply stumbled upon your web site and
    in accession capital to say that I acquire in fact loved account your blog posts.

    Any way I will be subscribing on your augment or even I success you get right
    of entry to consistently rapidly.

    Review my web-site; http://forum.hopeforlife.de//index.php//index.php/index.php?page=User&userID=1155

    ReplyDelete