Showing posts with label light bulb moments. Show all posts
Showing posts with label light bulb moments. Show all posts

Wednesday, April 20, 2016

Autism; Maybe the Journey is the Cure

Today Nick did something so simple, but miraculous in our ASD world. He took my breath away and got me thinking. Instead of viewing the cure as a destination, today I'm thinking of autism as a journey where every good day, every success IS the MIRACLE and the CURE. And, if one day one of those miracles comes in the form magic bullet...bring it on!  But today "Cure" means me knowing that when every miracle is chained together we will be where we are supposed to be, watching Nick become the best man he can be!



It's the little things we do day in and day out - almost like robots to teach our kids - which we hope will stick. We push, push and push believing in what could be, and out of no where, it all pays off when you get moments like the one I had today that took my breath away!!!

Nick takes the bus to school every morning. As part of our daily routine I have to get Nick's attention, tell him the bus is here, corral him, then walk him to the door, where I begin prompting him "Stop repeating, calm body, go down the stairs, yes your can earn free-time, get on the bus".

Today, I was standing in the kitchen and I said what I always say "Nick the bus is here, grab your lunch and go get on the bus".  And  that was it!!!  He grabbed his lunch, went out the door and got on the the bus....on this day, for the first time ever that was all it took.  I was just standing there and it hit me,, I didn't do anything! It was all Nick, and I was like "WOW", like really wow, like what just happened, WOW.

Then it got me thinking I needed to change my perspective when it comes to a cure for Autism. Maybe the cure isn't ever going to come in the form of immediate gratification, maybe there's no "Ta Da You're Cured". Maybe this is it.  Maybe the cure happens over the course of a lifetime, maybe it's just all the progress chained together that creates the best human our kids can be.

Today it's all about seeing the miracles :)

Friday, September 5, 2014

OMG, Who wouldn't want that Kid!!!!

Really?!, Who wouldn't want a teenager who...

Is joyous and laughing most of the time instead of complaining.

Never holds a grudge

Never lied to you.

Never rolled their eyes in disgust, made that awful "tisk" sound with their tongue, or looked at you as if you were crazy because you asked them to do something.

Could not care less about wearing "Labels" to impress their peers.

You can spend $5.00 or $500 for their birthday or Christmas, and they are just as thankful.

Has a great sense of humor.

Always let's their sibling take the front seat!

Isn't embarrassed to be seen with mom.

Has an incredible memory, seemingly fondly remembers everyone they ever met.

Never gossips, or puts down other people.

Judges people based only on how they treat others; not where you live, how you look, how much money you have, how popular you are or what you drive.

Treats everyone the same no matter their race, age, intelligence, or physical appearance.

Would never join a gang or get mixed up in the wrong crowd.

Feels remorse when they make you mad.

Almost never complains about doing daily chores.

Oh, and when they are sick will take really nasty tasking medicine without complaining.





Well I have one, Nick!!

So to all of you who ask "How do you do it?" or think my life is so hard, consider that.

and

because she see's this, even when she wants to toss him out, I also have an angel is his sister!






Sunday, August 17, 2014

Can I Have This Dance!

I had some friends over for a dinner party last night. A friend asked me to dance and as soon as we started Nick appeared, seemingly from no where and stepped between us.  The message was clear...I don't know you and you're not dancing with my mom!  I loved it and I danced with Nick. Wow, my guys protective.

Sunday, February 10, 2013

Our Daughters; Nick Molds My Perspective on Marriage and Lessons for My Daughter

Daughters, what will I pass on to mine?
I think about the past to be sure I got the lesson and I've let go of the things that do not serve me. Much to my surprise Nick has helped me on this path too, by forcing me to see how I had blurred the lines between the roles of a wife, a mom, a husband a son.  

I am determined be a Mom who can pass on what I've learned to my daughter, in a way that is honest as I can be and not through a lens colored with my pain, anger, fear, resentment and all their ugly buddies. I want what's comes out of my life, my mouth to be things that help her to make good life choices. I do not want to pass on my baggage to her.  Lord knows - being human - she's already packed a few on her own!. 

Evyn was scanning family photo's for me (including the one you see here) and honeymoon pictures. Her Dad and I were so happy.  I started thinking it must be weird for her to see those happy pictures, and understand how I got here. I wondered if she thought,  they were so happy and yet they ended up divorced, so whats the point, how could  it be any different for me?. Which got me reflecting on how, as a very young women, I fell in love with my husbands potential; his potential as a man and as a husband and not who he really was.  Seems for me "falling in love with potential" had been a recurring pattern.  For me, I was completely unaware that I was that girl who would fall in love with a man hoping he will change, expecting him to change and even trying to change him; devoting precious time and energy rescuing, reforming or transforming him to reach his potential. I did that by the way with no understanding that I wasn't doing what everyone does. All I saw was, none of us are perfect. Marriages grow. We got married in our 20's so I thought about his "potential" as something that was evolving. I thought he would naturally change when we got married, had kids. Don't we all??? Yes, most of us do. We grow up, we learn, we evolve.  Now I think, maybe, maybe not or maybe marrying potential just means a marriage where one person is not really good enough and the other will never be happy with what is and we all know what happens next. 

So after much thought and many years, here is what I think my lessons of my marriage has filtered down to that I want to pass on to my daughter; 

1. Don't mother the man by nurturing him to become what you want him to be; stop looking at a man and saying "Wow, he would look so good in those cloths; I'll buy them for him and make him wear them." Love the man for what he is now and not what you think he might one day be, for he may choose to never be that. Also consider that he might be hearing "Here honey when you put this on, then you'll be good enough".  

2. When entering a relationship or contract of any kind, ensure that both parties share the same morals, values and principles. Opposites in temperament and character attract, they can be very exciting and can even balance each other. On the other hand it's important to look closely to see if you are opposites in ways that will make it impossible for you to have a good life together. Opposites in morals, values and principals spell disaster and doom for any relationship - personal, romantic or business. When morals and values blatantly clash it's never good so don't be afraid to set up situations that create opportunities for you to learn the important stuff. 

3. You can see your future. Look at his relationships with his parents. Listen to what he says, how he feels, and most of all what he does, especially when it comes his mom. Chances are how he feels about his mom, how he treats her will be how he treats you. It may seem impossible in the glow of love, but it's true. There are a lot of things that happen, which could not of been predicted, this is not one of them. This is more like Hansel and Gretel's breadcrumbs.  

In the end my great life lessons are; pay attention, heed the signs and learn to distinguish the men from the boys.  For the later of those three, my son who needs a great deal of care helped me to awaken and realize that the energy and time to help a boy become a man should be reserved for the real boys in need of nurturing and development - my son my children and not husbands or boyfriends.

Thursday, February 7, 2013

Mom, Auto Pilot & the Brain "Mental Illness or Sleep Deprivation?"

Have you ever caught your brain having a conversation without you? I really mean, without you?. Have I finally gone over the edge? Today my brain was spinning away and suddenly I realized that the entire conversation it was having, was totally random and my brain was responding to a situation it had made up. It was nothing important, it was just  the "voice of me" talking to a made up someone that I really didn't like, setting them straight on a situation... that never happened!  When I tuned into my wandering brain, it was just like walking into a room and everyone stops talking!  Okay, is this really weird?  I am going to be the second one in my family with a diagnosis???  Or is this just a  manifestation of sleep deprivation??? You tell me?
LOL or OMG?